Something positive at last.

Please post here your experiences of MDS as a patient, carer, family or friend

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Brian_adair2000
Posts: 11
Joined: 23 Dec 2013 17:32

Something positive at last.

Post by Brian_adair2000 » 17 Jul 2014 11:51

Folks, just wanted to share my good news in that my epo injections in combination with my gcsf injections have started to show positive results. My red blood cell count has improved from 8.5 to 9.2 and now to 9.7 over a period of three months. My whites have gone a bit nuts rising from 2.2 to 15 in the same period but that's ok just a slight modification in doses will bring that down a bit apparently.
So after months and months of negative news I've received some positive and what a relief, just hope they continue to improve.

So feeling ok and realising that things aren't so bad after all.

Brian

Age 53

Feeling positive.
Russell
Posts: 52
Joined: 15 Apr 2010 16:56
Location: Stoke Poges, Bucks
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Re: Something positive at last.

Post by Russell » 29 Jul 2014 16:44

Brilliant! Brian, you are almost the same age as me so I understand a little bit about the joys of having decent Hb. Keep posting.

Russell
Age 55
RCMD 2009 at age 49
1x MUD BMT 2010
1x MUD SCT 2010
1x Haplo Transplant 2010
4 Marathons
and
4 other Half Marathons, a 10 miler and a Spartan Race!
Brian_adair2000
Posts: 11
Joined: 23 Dec 2013 17:32

Re: Something positive at last.

Post by Brian_adair2000 » 28 Aug 2014 20:18

Well the old saying goes one swallow doesn't a summer make and I'm afraid it's true. I was getting all excited thinking my hb was rising and yes you guessed it, back down to 9.1 so I'm afraid posting a comment like something positive at last was a tad premature. So it looks like epo isn't for me, ah well got to grin and bear it I'm afraid.
punda milia
Posts: 22
Joined: 01 Oct 2012 14:08
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Re: Something positive at last.

Post by punda milia » 29 Aug 2014 09:24

I am so sorry that you have been disappointed. Life is really hard.

With best wishes

Diana
66 year female. Diagnosed with mds 2012. In 2002 treated for Non Hodgkins Lymphoma with chlorambucil. Have enlarged macrocytes, low neutrophils & low white cells. Also have Trisomy 8 & classified Intermediate 1. Now on watch & wait
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