et

[GHBB11]

hello recently joined and am very confused,my et is probably progressing to mf ,I was told not to google it but sadly I did and was very worried about the prognosis. however I have now found this site and would like to compare my situation with others. my symptoms are fatigue at the moment, but my platelets are normal,slightly low hb ,and slightly enlarged spleen.i just wondered if I need to start treatment as I only take aspirin. and advice would be appreciated ,Thank you.

[chris]

Hello

Thank you for joining this Forum

However, like all other support group chat forums, we are not able to give you any medical advice. We just share experiences patient-to-patient.

I’m taking a guess that ET is Essential Thrombocytopenia and MF is myelofibrosis? If this is the case, this may not be the most helpful site for you as we are just for people with MDS or CMML.

I think this support group may be better for you as it is primarily for people with ET which does sometimes progress to myelofibrosis.
https://www.mpnvoice.org.uk/?s=Myelofibrosis

I hope this is helpful. If you are needing information, please ask your clinician or maybe a clinical nurse specialist can help? Also MacMillan have a very useful website with information on many kinds of blood cancer. They also offer counselling services which can help if you are anxious and frightened about your new diagnosis.

With best wishes

Chris

[GHBB11]

ok thank you for replying and your advice.