MDS UK

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No unread posts About the Forum - PLEASE READ THIS FIRST

What to post where and general usage details, please read before posting

Moderator: Steering Committee

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Fri Aug 02, 2013 11:51 am

sophie View the latest post

No unread posts My experiences

Please post here your experiences of MDS as a patient, carer, family or friend

Moderator: Steering Committee

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895

Tue Jul 28, 2015 5:17 pm

Goldtooth View the latest post

No unread posts Comments and other issues about MDS

Comments, thoughts and issues on any other aspects of MDS - not covered by other folders - PLEASE CHECK before you post in this folder.

Moderator: Steering Committee

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Sun May 31, 2015 10:04 pm

Kes View the latest post

No unread posts Say hello and general messages

Moderator: Steering Committee

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Thu Jul 30, 2015 6:17 pm

Mummybear View the latest post

No unread posts Contact requests - members only

Post here to make contact with others in specific regions of the UK.

Moderator: Steering Committee

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Sun Jun 21, 2015 3:22 pm

Russell View the latest post

No unread posts Bone Marrow Transplant

Post here for ANY bone marrow transplant related issues

Moderator: Steering Committee

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Mon Jun 29, 2015 12:55 pm

sophie View the latest post

No unread posts CMML specific chat

Moderator: Steering Committee

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Thu May 28, 2015 6:14 pm

janbev View the latest post

No unread posts 5q- and lenalidomide

Posts related to the sub-type 5q deletion

Moderator: Steering Committee

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Tue Jul 30, 2013 4:37 pm

sophie View the latest post

No unread posts Transfusion issues - Iron Overload & chelation

This folder is purely for messages related to general transfusion issues, as well as iron overload & iron chelation treatment due to those frequent red blood cell transfusions.

Moderator: Steering Committee

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Tue May 28, 2013 8:49 pm

christina View the latest post

No unread posts Childhood MDS

MDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.

Moderator: Steering Committee

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Sun Jul 19, 2015 11:27 am

Russell View the latest post

No unread posts MDS and autoimmune conditions

Folder for messages about the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.

Moderator: Steering Committee

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Tue Jun 16, 2015 1:27 am

Kes View the latest post

No unread posts Travel or Health/Life insurance for MDS

For information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.

Moderator: Steering Committee

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Wed Nov 26, 2014 4:34 pm

projectworker View the latest post

No unread posts Events and fundraisers

Details of upcoming events and fundraisers. Please add your own post - and update us about your great challenges. Thank you!

Moderator: Steering Committee

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Thu Jul 09, 2015 1:52 pm

projectworker View the latest post

No unread posts Edinburgh Patient Forum May 2011

Get in touch with others attending the Forum - ahead of time and keep in touch afterwards.

Moderator: Steering Committee

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Tue Jun 07, 2011 3:25 pm

Jayne View the latest post

No unread posts Regional Meeting Groups

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

Moderator: Steering Committee

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Fri Nov 14, 2014 6:25 pm

projectworker View the latest post

No unread posts Ireland and Northern Ireland Group

We are extending our network to Ireland and N Ireland and aim to create a specific support network for MDS patients and carers there. Please register your interest - and use this platform to communicate.

Moderator: Steering Committee

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Wed Oct 02, 2013 6:02 pm

sophie View the latest post

No unread posts Useful links

Please post any useful / relevant links here for possible inclusion on the main website

Moderator: Steering Committee

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Sat Jan 31, 2015 2:30 pm

chris View the latest post

No unread posts Problems using the forum

Please post any problems you find in using the forum here

Moderator: Steering Committee

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Tue Feb 05, 2013 1:30 pm

sophie View the latest post

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