MDS UK

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No unread posts About the Forum - PLEASE READ THIS FIRST

What to post where and general usage details, please read before posting

Moderator: Steering Committee

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Fri Aug 02, 2013 10:51 am

sophie View the latest post

No unread posts My experiences

Please post here your experiences of MDS as a patient, carer, family or friend

Moderator: Steering Committee

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929

Tue Feb 02, 2016 7:34 pm

chris View the latest post

No unread posts Comments and other issues about MDS

Comments, thoughts and issues on any other aspects of MDS - not covered by other folders - PLEASE CHECK before you post in this folder.

Moderator: Steering Committee

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Sat Jan 30, 2016 9:23 pm

lucy View the latest post

No unread posts Say hello and general messages

Moderator: Steering Committee

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695

Mon Jan 18, 2016 10:31 am

Bobby Shaw View the latest post

No unread posts Contact requests - members only

Post here to make contact with others in specific regions of the UK.

Moderator: Steering Committee

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Sun Jun 21, 2015 2:22 pm

Russell View the latest post

No unread posts Bone Marrow Transplant

Post here for ANY bone marrow transplant related issues

Moderator: Steering Committee

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Mon Jun 29, 2015 11:55 am

sophie View the latest post

No unread posts CMML specific chat

Moderator: Steering Committee

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Thu Jan 07, 2016 2:28 pm

MollyP View the latest post

No unread posts 5q- and lenalidomide

Posts related to the sub-type 5q deletion

Moderator: Steering Committee

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Tue Jul 30, 2013 3:37 pm

sophie View the latest post

No unread posts Transfusion issues - Iron Overload & chelation

This folder is purely for messages related to general transfusion issues, as well as iron overload & iron chelation treatment due to those frequent red blood cell transfusions.

Moderator: Steering Committee

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Tue May 28, 2013 7:49 pm

christina View the latest post

No unread posts Childhood MDS

MDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.

Moderator: Steering Committee

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Sun Jul 19, 2015 10:27 am

Russell View the latest post

No unread posts MDS and autoimmune conditions

Folder for messages about the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.

Moderator: Steering Committee

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Tue Jun 16, 2015 12:27 am

Kes View the latest post

No unread posts Travel or Health/Life insurance for MDS

For information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.

Moderator: Steering Committee

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Tue Nov 03, 2015 2:29 pm

chris View the latest post

No unread posts Events and fundraisers

Details of upcoming events and fundraisers. Please add your own post - and update us about your great challenges. Thank you!

Moderator: Steering Committee

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Thu Jul 09, 2015 12:52 pm

projectworker View the latest post

No unread posts Scotland Issues and Events

Get in touch with others attending the Forum - ahead of time and keep in touch afterwards.

Moderator: Steering Committee

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Tue Jun 07, 2011 2:25 pm

Jayne View the latest post

No unread posts Regional Meeting Groups

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

Moderator: Steering Committee

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Wed Nov 11, 2015 1:48 pm

sophie View the latest post

No unread posts Ireland and Northern Ireland Group

We are extending our network to Ireland and N Ireland and aim to create a specific support network for MDS patients and carers there. Please register your interest - and use this platform to communicate.

Moderator: Steering Committee

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Wed Oct 02, 2013 5:02 pm

sophie View the latest post

No unread posts Useful links

Please post any useful / relevant links here for possible inclusion on the main website

Moderator: Steering Committee

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Fri Jan 22, 2016 10:38 am

sophie View the latest post

No unread posts Problems using the forum

Please post any problems you find in using the forum here

Moderator: Steering Committee

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Fri Jan 22, 2016 10:45 am

sophie View the latest post

No unread posts Ideas and thoughts on the website

Any ideas, thoughts, contributions for inclusion on the website

Moderator: Steering Committee

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Mon Dec 05, 2011 3:23 pm

sophie View the latest post

No unread posts Nutrition and general health supplements

This is a folder for MDS patients and carers wishing to share their own personal experience regarding nutrition and the use of different supplements to help with general health.
MDS UK does NOT endorse or recommend any products that may be mentioned here.
MDS UK strongly advises to ALWAYS consult your clinical team before taking ANY supplements.

Moderator: Steering Committee

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Thu Jan 07, 2016 12:42 pm

sophie View the latest post

Delete all board cookies | The team

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