MDS UK

Board index

All times are UTC [ DST ]

What to post where and general usage details, please read before posting

Moderator: Steering Committee

5

4

Thu Apr 11, 2013 4:04 pm

sophie

Please post here your experiences of MDS as a patient, carer, family or friend

Moderator: Steering Committee

72

659

Thu May 23, 2013 11:32 pm

Sarah Reakes

Comments, thoughts and issues on any other aspects of MDS - not covered by other folders - PLEASE CHECK before you post in this folder.

Moderator: Steering Committee

58

477

Thu Apr 04, 2013 8:47 pm

chris

Moderator: Steering Committee

46

440

Thu May 23, 2013 11:45 pm

red

Post here to make contact with others in specific regions of the UK.

Moderator: Steering Committee

38

131

Sun Apr 21, 2013 8:45 pm

christina

Post here for ANY bone marrow transplant related issues

Moderator: Steering Committee

6

133

Wed Oct 26, 2011 4:26 pm

chris

Moderator: Steering Committee

10

85

Tue May 21, 2013 4:42 pm

chris

Posts related to the sub-type 5q deletion

Moderator: Steering Committee

5

22

Thu May 23, 2013 10:59 pm

Sarah Reakes

This folder is purely for messages related to general transfusion issues, as well as iron overload & iron chelation treatment due to those frequent red blood cell transfusions.

Moderator: Steering Committee

2

2

Wed May 22, 2013 4:24 pm

sophie

MDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.

Moderator: Steering Committee

1

2

Wed Feb 20, 2013 2:36 pm

lizzylouise

Folder for messages about the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.

Moderator: Steering Committee

1

1

Wed Apr 24, 2013 5:40 pm

sophie

For information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.

Moderator: Steering Committee

3

51

Tue Feb 19, 2013 11:31 am

chris

Get in touch with others attending the Forum - ahead of time and keep in touch afterwards.

Moderator: Steering Committee

2

11

Tue Jun 07, 2011 3:25 pm

Jayne

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

Moderator: Steering Committee

12

45

Fri Apr 05, 2013 5:42 pm

sophie

We are extending our network to Ireland and N Ireland and aim to create a specific support network for MDS patients and carers there. Please register your interest - and use this platform to communicate.

Moderator: Steering Committee

3

6

Wed Feb 13, 2013 8:17 pm

sophie

Please post any useful / relevant links here for possible inclusion on the main website

Moderator: Steering Committee

14

24

Thu Jan 12, 2012 9:48 pm

Sheldon

Please post any problems you find in using the forum here

Moderator: Steering Committee

8

25

Tue Feb 05, 2013 1:30 pm

sophie

Board index

All times are UTC [ DST ]

Total posts 2254 | Total topics 337 | Total members 392 | Our newest member red