Myelodysplastic Syndromes (MDS) Videos
Learn more about how to live with MDS by watching patients describing their experience of coping with the condition, and talking about transfusions and treatments.
You can also watch interviews with members of the clinical staff at the MDS Centre of Excellence King’s College Hospital in London. Prof. Ghulam Mufti, Haematology Consultant, and Janet Hayden, Myeloid Clinical Nurse Specialist explain what MDS is, its causes and treatment and how to deal with MDS symptoms.
Claudia Richards, Local group coordinator, MDS UK Patient Support Group – explains her own emotional journey as an MDS patient, from fraught times at diagnosis 8 years ago – to becoming an empowered, educated, active patient – and therefore a calmer and stronger person. Read MoreWatch the video
Dr Harpreet Kaur, Consultant Haematologist, Sheffield, talks about the importance and need and patient’s right for 2nd opinions – and how these requests for an additional opinion will never offend her. MDS Specialists Visit Your MDS Centre of Excellence List of MDS Centres in the UK Watch the latest videos on MDS Dr Martin Wermke […]Watch the video
Professor Fabio Efficace, Professor of Medical Social Sciences, GIMEMA Data Center, Rome, Italy, talks about the importance of measuring QOL in MDS, in a proper scientific way, in order to use it in treatment decisions and clinical trials. MDS Survey – Assessing the Needs for Support Fill in MDS UK Survey! QOL Questionnaire Watch the […]Watch the video
Dr Shahram Kordasti, Haematologist, King’s College London, explains the role of the immune system in MDS, how we can use that immune response to change the course of the disease, and how this may lead to a more personalised treatment approach of MDS. Read MoreWatch the video
On the 25th of October is MDS World Awareness Day. On this day MDS UK and MDS patient groups all over the world join forces to get the word out about MDS. This video was made by the MDS Alliance – the global umbrella organisation gathering all MDS Patient Support Groups – to mark World Awareness Day. Would you like […]Watch the video
Russell Cook, Myelodysplastic Syndrome patient tells us about the stem cell transplant experience that saved his life.He is unusual, as he received three transplants – two from an unrelated donor – which failed – followed by a stem cell donation from his son 15 year old son Luke – which finally worked. Read MoreWatch the video
Evie McClean is an incredibly talented young person who started a YouTube Channel in March 2016, telling the world about her life and her favorite things. Evie is a member of the MDS UK Patient Support Group and in her lively video clips she illustrates how wonderfully she and her family have learned to live with MDS. […]Watch the video
Life Beyond Limits – Full HD Spanish English subtitles from GEPAC on Vimeo. This video was made to mark the first MDS World Awareness Day – on 25th October 2012 – and to illustrate the Life Beyond Limits campaign already run in several countries. This campaign highlights the fact that all MDS patients deserve to […]Watch the video
Watch Prof Mufti's Video on MDS In this video Prof Mufti, from King’s College Hospital, gives a detailed explanation of MDS, discusses causes, progression, diagnosis and treatment of MDS. He also talks about the challenge of managing MDS and how awareness of the condition has improved – but more still needs to be done. Professor Ghulam […]Watch the video
Janet Hayden talks about newly diagnosed MDS patients, symptoms of MDS, difficulty in managing the condition, drug treatments, and challenges faced by clinical staff – as well as awareness of MDS. Janet Hayden is a Myeloid CNS and works with Professor Ghulam Mufti at King’s. She specialises in Myeloid conditions. King’s is privileged to have […]Watch the video