Tag: myelodysplastic syndrome

Survey in Europe – Measuring Quality of Life

London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA organisations, such as for example NICE (National Institute for Clinical Health and Excellence) mostly use a questionnaire called the EQ-5D to measure the impact of […]

Read full story

Russell’s stem cell transplant experience – new video

New video clip – Russell Cook’s stem cell transplant experience 05/03/15 We have uploaded a new video clip of our friend and new MDS UK trustee Russell Cook. He tells us in detail about his experience of his three stem cell transplants – two from an unrelated donor – which failed, followed by stem cells […]

Read full story
Free donations by shopping