Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? Until now, bone marrow sampling has been the primary technique for routine follow-up checks on MDS patients after initial diagnosis. The bone marrow is the heart of the disease and reveals important clues, for example, about whether […]
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London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA organisations, such as for example NICE (National Institute for Clinical Health and Excellence) mostly use a questionnaire called the EQ-5D to measure the impact of […]
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New video clip – Russell Cook’s stem cell transplant experience 05/03/15 We have uploaded a new video clip of our friend and new MDS UK trustee Russell Cook. He tells us in detail about his experience of his three stem cell transplants – two from an unrelated donor – which failed, followed by stem cells […]
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