Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all did it together. Thanks to colleagues at Anthony Nolan, all other blood cancer charities, […]
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MDS World Awareness Day – Preparations for 2016 October 25th is being marked by a global community of patients, patient groups and professionals supporting people living with MDS as MDS World Awareness Day. We are preparing for MDS Day 2016, Tuesday 25th of October, to make it an exciting day for patients and their families […]
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The Cancer Drug Fund (CDF) de-listing further drugs Many blood cancer patients are about to face more severe issues of access to treatment, following the announcement that the CDF is de-listing further drugs in order to balance its budget. Twelve of these are blood cancer drugs. None of the cuts affect MDS patients, but the […]
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2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient. She had a […]
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19th Congress of the European Haematology Association (EHA) has taken place this year between 12th and 15th June in Milan, Italy. This event is set up for physicians and representatives of patient support groups to promote excellence in patient care, research and education in haematology. As part of the Worldwide Alliance of national MDS Patient support […]
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