MDS Survey – Assessing the Needs for Support

As we are currently running a new survey about MDS and Covid-19, we thought we’d share again the results of our last large MDS survey. We will compare the results of some of the questions, where relevant, and share with you.

Don’t forget – there is still time to complete the Covid-19 and MDS survey until mid-November.

NHS staff and MDS UK would be grateful for a really robust number of participants.

Assessing the needs of patients with Myelodysplastic Syndromes

In 2012 the MDS UK Patient Support Group began the very important endeavour of systematically assessing the needs of patients suffering from Myelodysplastic Syndromes in the UK.

“UK MDS patients – Assessing the needs for support” is the largest UK-specific study ever to focus exclusively on patient experience, Quality of Life, and needs in MDS.

These results were presented as a poster session at the 3 most significant haematology congresses: EHA, ASH and BSH.

Click on the image to download and print the results

Covid 19: How have you coped so far?

All MDS patients in UK are invited to take part

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