MDS World Awareness Day
MDS World Awareness Day 2019: HERE TO HELP!
Get ready for MDS World Awareness Day on social media
- Tag or mention a person, hospital, event that is particularly helpful to you, and simply say THANK YOU!
- You can also take the opportunity to mention issues, make suggestions for improvements, and share best practice for MDS care.
- USE #MDSWAD on twitter Facebook and Instagram for MDS World Awareness Day
MDS World Awareness Day Poems
MDS Awareness Day is being marked this year by using poetry to describe the many issues faced by patients and their families.
MDS can affect you in different ways – some obvious, some much less so. Some hit you in ways you could not ever imagine. The plain physical symptoms can be fairly easy to talk about. The deep fatigue experienced by many, however, is harder to explain and patients struggle with the loss of independence it creates.
The emotional issues are the hardest to broach. People can’t even start to talk about it, or don’t know how. This is why, it is sometimes easier to express these difficult feelings in poetry – as an outlet, which everyone can identify with, and may help them express their own emotions.
Throughout September, Blood Cancer Awareness Month, we started collecting poems, and featuring the wonderful work of KateD, now our official MDS poet. Kate, an MDS patient herself, has written numerous poems about her thoughts, life, emotions and also other people’s experiences of MDS.
Help us mark the day by sharing this poetry widely. We hope to reach new audiences this way, to make more people aware of this rarer blood cancer.
The day will also be marked in several locations in the UK – with some events bringing together people affected by MDS
On MDS Awareness Day 2019, we will reveal a new, very special international MDS poem, Kate created with input from many of the international MDS patient organisations around the world!
MDS Fundraising Events
MDS World Awareness Day 2018
On October 25 we raised public awareness of myelodysplastic syndromes (MDS) and its symptoms on local and national radio:
- 11 interviews
- 130 minutes of airtime
- We reached 1.78m people
MDS World Awareness Day 2016
We surprised people in London on 25th Oct with a flashmob
A happy bunch gathered around Harrods and danced to the song I am what I am by Gloria Gaynor. We wore our MDS t-shirts with pride and raised awareness of MDS!