Join your Local UK Group!

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Come and join this brand new group in the Yorkshire region! Patient Brian Poulter and his wife Jenny have just started this group in Yorkshire. All local patients are welcome to attend, as are relatives and friends. This is an opportunity to get to […]

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Come and join this brand new group in the Midlands region! A few words from Sophia, Midlands Group Coordinator: “I started to learn more about MDS following my Grandad’s diagnosis back in 2017. Looking back on this period I recall the uncertainty and isolation […]

In the Yorkshire/Leeds area several patients were interested in meeting regularly and they have now established a local group! Meeting place: The Old Fire Station, Jimi’s Community Room, Gipton Approach, Gipton Leeds LS9 6NL In Midlands there was also a strong interest from many patients, and they have now launched: Meeting place: Seminar room 1 […]

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Led by Andy Veitch. Come and join this growing and energetic group in this region! All local patients are welcome to attend, as are relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network […]

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Patient Chris Dugmore started this group in Chelmsford. Meetings take place every 3-4 months and it includes informal talks by local physicians or nurses. They offer a great opportunity for patient to patient exchange and support. Location: Broomfield Village Hall (Small Hall) 158 Main […]

Bringing all the conditions together, a new general haematology group at Royal Devon & Exeter Hospital was set up by Rachel Stewart. All MDS patients treated at the Royal Devon & Exeter Hospital are invited to come to the meetings which take place on the first Thursday of every month between 4:30 pm  and 6 pm. Please contact […]

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Location: NOVOTEL SOUTHAMPTON, 1 West Quay Road, Southampton SO15 1RA Email: southamptongroup@mdspatientsupport.org.uk

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Led by Derby nurse Sarah Dawson and patient and carers Bev and Janet Nye. We encourage other clinicians and nurses to attend this group – and to spread the news about this additional support opportunity. Aims to meet every 3-4 months.

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Set-up after our well attended full day Manchester Forum with Dr Mike Dennis, the Manchester local group is led by patient Peter Threader and 3 further patients and carers. Due to schedule meetings every 3-4 months between 4pm and 7pm

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes This group meets every 3 months on Friday mornings between 10.30 am and 12.30 pm. Led by Advanced Nurse Practitioner Kirsty Crozier and assisted by patients Claudia Richards and Gwyneth Brown-Lowe. Contact: For more information and dates of meetings, please email oxfordgroup@mdspatientsupport.org.uk

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Several volunteers run this regional group – and have set themselves up as a committee. All members are MDS patients. Activities alternate between presentations and general get together opportunities. This group also gets involved in raising MDS awareness regionally. We are looking for a […]

Group led by the Haematology Clinical Nurse Specialist at KCH. Meetings every 3-4 months – 3pm to 6pmCurrent meetings are combined with the Aplastic Anaemia Trust (AAT), with both AA and MDS patients invited to attend.Feedback, ideas for future meetings and comments  from the meeting on 19.07.12 can be seen here.Location: Cicely Saunders Institute, King’s […]

A regional group started meeting at the BSUH in Brighton on 6th February 2013.This group is co-led by two patients – Lynn Hale and Alison Parker – as well as nurses and haematologists at the hospital.Meetings every 3-4 months – regular times and days to be determined.Meetings will alternate between talks by staff and  patient to […]

An official MDS Ireland group was formed during 2013/2014 and is led by Sinead Mahon, whose Mum Brenda has MDS. MDS UK is offering advice, guidance and financial support to this emerging group. Dr Helen Enright of the Centre of Excellence in Dublin also supports the group. More news available soon – do get in touch with […]

Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Location: The Grove Hotel 2 Grove Road East Cliff Bournemouth Dorset BH1 3AU Find it in this Map Email: Bournemouthgroup@mdspatientsupport.org.uk