Local UK Groups
Here you will find contact details, updates, photos of all our Local and Regional groups in the UK.
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes
We need volunteers willing to help maintain existing groups and set up new groups in their local areas.
Can you help?
Please get in touch if you feel you could contribute a bit of time to your Local MDS Support Group:
Tel: 020 7733 7558
"Everyone was so friendly and the information provided was very useful."
"Very helpful talking to other patients"
Why attending a local group? "I would stay for only half an hour and then give my excuses and leave"
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Led by Derby nurse Sarah Dawson and patient and carers Bev and Janet Nye. We encourage other clinicians and nurses to attend this group – and to spread the news about this additional support opportunity. Aims to meet every 3-4 months.Read full post
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Set-up after our well attended full day Manchester Forum with Dr Mike Dennis, the Manchester local group is led by patient Peter Threader and 3 further patients and carers. Due to schedule meetings every 3-4 months between 4pm and 7pmRead full post
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes This group meets every 3 months on Friday mornings between 10.30 am and 12.30 pm. Led by Advanced Nurse Practitioner Kirsty Crozier and assisted by patients Claudia Richards and Gwyneth Brown-Lowe. Contact: For more information and dates of meetings, please email firstname.lastname@example.orgRead full post
Bringing all the conditions together, a new general haematology group at Royal Devon & Exeter Hospital was set up by Rachel Stewart. All MDS patients treated at the Royal Devon & Exeter Hospital are invited to come to the meetings which take place on the first Thursday of every month between 4:30 pm and 6 pm.Please contact Rachel for […]Read full post
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Patient Chris Dugmore started this group in Chelmsford. Meetings take place every 3-4 months and it includes informal talks by local physicians or nurses. They offer a great opportunity for patient to patient exchange and support.Read full post
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes Several volunteers run this regional group – and have set themselves up as a committee. All members are MDS patients. Activities alternate between presentations and general get together opportunities. This group also gets involved in raising MDS awareness regionally. The main contact is John […]Read full post
Group led by the Haematology Clinical Nurse Specialist at KCH. Meetings every 3-4 months – 3pm to 6pmCurrent meetings are combined with the Aplastic Anaemia Trust (AAT), with both AA and MDS patients invited to attend.Feedback, ideas for future meetings and comments from the meeting on 19.07.12 can be seen here.Location: Cicely Saunders Institute, King’s […]Read full post
A regional group started meeting at the BSUH in Brighton on 6th February 2013.This group is co-led by two patients – Lynn Hale and Alison Parker – as well as nurses and haematologists at the hospital.Meetings every 3-4 months – regular times and days to be determined.Meetings will alternate between talks by staff and patient to […]Read full post
An official MDS Ireland group was formed during 2013/2014 and is led by Sinead Mahon, whose Mum Brenda has MDS.MDS UK is offering advice, guidance and financial support to this emerging group.Dr Helen Enright of the Centre of Excellence in Dublin also supports the group.More news available soon – do get in touch with us if you […]Read full post
This regional group started on 14th March 2014 thanks to the help of our member Frank Richard Stoodley and his wife Barbara.Unfortunately the meetings are currently on hold, as we are looking for a new venue and a few volunteers who are happy to help meet and greet new patients.For more information: Please contact MDS UK main office – […]Read full post
Yorkshire/Leeds area: several patients interested in meeting regularly. Meeting place required is being organised.Cardiff/Bristol/Weston-Super-Mare area: we need more patient interest to establish a regular local group. As well as a meeting place.Midlands: strong interest from many patients – not been able to hold a forum in the area in 2012 – due to main office […]Read full post