New animation to explain MDS to all

Please help us support more patients!

Donate on MDS UK JustGiving Page

This ground-breaking animation aims to raise awareness of MDS (Myelodysplastic Syndromes) and create an accessible story for newly diagnosed patients and their loved ones, signpost them to help and support and raise funds for MDS UK.

Can you help us distribute this clip in hospitals waiting rooms?

Help us to help you and others: If your haematology waiting room has an internal TV system in place – please ask the Waiting Room Manager if this information cartoon could be featured on their TV ?

Ask the waiting room manager to contact us on


Reference: MDS-Myelo’s Hope Infocartoon

Please help us fund MDS UK research work:

  • We would aim to use donations to help us cover the costs arising from our involvement in, and contribution to MDS-related research.
  • MDS UK staff, committee members and expert patients are involved all year round in different aspects of research, including addressing the issue of access to MDS treatments.
  • We regularly provide input to Patient and Public Information (PPI) work, for both commercial and non-commercial clinical trials. We are financially compensated for some of this work, but not all.
  • This wider research and access work takes time, effort and energy, and therefore needs funds.
  • Without this work, ethics boards would not approve trials, EMA and NICE processes would be delayed, and access to drugs might be compromised. And, above all, the voice, needs and wishes of patients would not be heard or considered.
  • Additionally, having funded one PhD research project (at Queen’s University, Belfast), we would like to consider funding more direct research, should our funds allow us to do so in future.
  • If you have found this topic of interest and would like to support us in such work, we would welcome any donations, however small. If you can, please use Gift Aid to enhance the value of your donation to us by 25%, at no additional cost to yourself.

Through our input to the European Medicines Agency (EMA), and National Institute of Clinical Health and Excellence (NICE),we have been heavily involved in work undertaken in order to make MDS drugs accessible to patients.

This type of work helps to ease and speed up the process of licensing of drugs, and their financial approval for use in the NHS.

Patient groups like us play an absolutely crucial role in this area, and can make the difference between a drug being accessible, or not.

Please help us support more patients!

Donate on MDS UK JustGiving Page

Free donations by shopping