Midlands Patients’ Group29 Jan. 2020
Midlands Local MDS Group
Support, Information, Awareness & Campaigns for those affected by Myelodysplastic Syndromes
Come and join this brand new group in the Midlands region!
A few words from Sophia, Midlands Group Coordinator:
"I started to learn more about MDS following my Grandad's diagnosis back in 2017.
Looking back on this period I recall the uncertainty and isolation that followed the knowledge that this was a 'rare' cancer. Having heard of the success of the other regional support groups, I was determined to bring this initiative to the inevitably large patient and relative population of the Midlands region. I appreciate the potential for such a group to provide that unique degree of comfort that is necessary alongside the standard medical care.
Having completed my Medical Sciences degree I am now spending the year working in research at the Queen Elizabeth before returning to university to begin my medicine degree. My mum has also worked within the trust for the past 20 years. Together, we are both very familiar with the hospital and its welcoming environment. Looking back to the time when I knew very little about MDS, it is incredible to now be able to set up the very first Midlands Region Support group. I hope these meetings provide a friendly platform to gain the necessary knowledge, guidance and support that remains individual to every person living with MDS and their loved ones.
I look forward to meeting many of you!"
All local patients are welcome to attend, as are relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.