In the first video of this series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds talks to Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, about how important it is to be a well-informed patient. Watch the video and read the excerpts below.
What are the typical issues when you first diagnose a patient with MDS?
What difference does it make to you personally - in your daily consultations – to have a well-informed or empowered patient? Benefits/drawbacks?
"If the patient has some idea about what MDS is and they come with a set of questions from their own readings, that is a useful framework to find the details that are specific to them.
I usually use the MDS Patients Support Booklet... I mark the booklet and the sections that are relevant to them..." Prof. David Bowen