Research FOR Patients

We aim to present an easily understandable version of the latest medical research on MDS

Learn about the latest research projects and use this information to discuss with your consultants or nurses: when you are actively involved in your own care, treatment and support, it can improve your outcomes and experience of the disease.

All the articles listed in this page have been properly vetted for scientific accuracy.

Watch also our Video Interviews with MDS Experts and read more on the MDS Clinical Trials currently recruiting in the UK.

Precision medicine is coming to the clinic to treat MDS

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? by Niels Jensen What is precision medicine? In precision medicine the basic idea is to develop a treatment for the specific cancer of individual patients based on a genetic understanding of their disease. Precision medicine has also been […]

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Harmony: a European project with good news for MDS patients

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The Harmony Alliance is a first-of-its-kind partnership of over 80 private and public organisations aiming at enabling better and faster treatments for patients with blood cancers such as MDS. Patient Organisations have a very active role in Harmony, and […]

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The new generation of MDS diagnostics: the Myeloid Gene Panel

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Report from the MDS Education Forum that took place in November 2018. Interviews by Sophie Wintrich Chief Executive of MDS UK Patient Support Group. What are Myeloid Gene Panels and how are they used in MDS? Myeloid Gene […]

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New service for patients: online video consultations with an MDS specialist

This is a brand new NHS service for MDS patients, for online clinical consultations with one of the main MDS specialists in the UK, Professor David Bowen, from the MDS Centre of Excellence in Leeds. Video consultations are available on Wednesdays but with some flexibility. Make an appointment today! Contact Prof Bowen’s secretary by mail […]

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Vidaza / Azacitidine: Know more about this drug

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Vidaza and Azacitidine are the same drug Azacitidine is the official generic and non-proprietary name given to the drug active ingredient while Vidaza is its trade name. The drug is widely available in the UK for the treatment […]

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What is CAR-T cell therapy? Learn how this immunotherapy works in blood cancer

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Cell therapies, sometimes called “living therapies”, are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR-T cell immunotherapy. This […]

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How is Quality of Life in patients with Myelodysplastic Syndromes (MDS) measured?

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? In this article David Steensma, MD FACP at the Dana-Farber Cancer Institute and Harvard Medical School, Boston, Massachusetts USA discusses how to incorporating the Patient’s Voice into MDS Care and Research. Measuring quality of life: how to capture […]

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