We aim to present an easily understandable version of the latest medical research on MDS

You will be able to read up here the latest research projects and use this information to discuss with your consultants or nurses.

Evidence shows that when you are actively involved in your own care, treatment and support, it can improve your outcomes and experience of the disease.

All the articles listed in this page have been properly vetted for scientific accuracy. 

The European MDS Registry: learning about the ‘real’ MDS patients

Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? What is a clinical Registry? In order to develop new drugs to treat MDS, clinical trials are mandatory, typically testing the new drug against the treatment that is considered to be the standard at that time. However […]

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Stored Blood is as Good as Fresh Blood Reveals Study

Fresher is not better It’s been long thought that when blood transfusions are needed, it may be best to use the freshest blood, but McMaster University researchers have led a large international study proving that it is not so. The study of almost 31,500 patients at six hospitals in four countries showed that having a […]

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Blood vs Bone marrow: New technologies can reduce the need for bone marrow biopsies

Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? Bone Marrow Biopsies: a less painful alternative for routine check-ups Until now, bone marrow sampling has been the primary technique for routine follow-up checks on MDS patients after initial diagnosis. The bone marrow is the heart of […]

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