Depending on blood transfusion has a negative impact on the quality of life of MDS patients, but it is unavoidable for many patients. That is the reason why a group of Canadian and United Kingdom haematologists are looking into running a series of studies to improve the red blood cell transfusion experience for MDS patients […]
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When the blood lacks enough healthy red blood cells or haemoglobin, anemia symptoms develop, typically fatigue, shortness of breath, weight loss, paler than normal skin, etc and a blood transfusion is considered. There is no set haemoglobin level at which a blood transfusion is given, but your doctor will assess your symptoms and you will […]
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More than 70 participants representing medical specialists and nurses caring for MDS patients, MDS patient advocates, medical researchers and data managers, healthcare authorities, regulators, HTA experts and industry representatives gathered for the first MDS-RIGHT multi-stakeholder meeting on the 3 May 2017 in Valencia, Spain – in conjunction with the biannual MDS 2017 International Symposium. This project […]
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This year, our charity MDS UK was lucky enough to have 2 runners in the 2017 London Marathon Alec Holah, brother in law of Gavin Hepburn, who passed away a year ago, and Kirsty Crozier, an MDS Clinical Nurse Specialist in Oxford and Member of the MDS Committee.We took this opportunity to conduct several interviews […]
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A new project was trialled for more than two years by nurses from home-care units in Spain: ‘Azacitidine (Vidaza) administration at home’. Now it has been rolled out to include most of the hospitals in Spain administering Azacitidine. It was initially undertaken by nurses, not necessarily haematology nurses, who would visit patients at home usually by taxi […]
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Janet Hayden, Myeloid Clinical Nurse Specialist, from Kings College NHS Foundation Trust, London (Adapted by MDS UK Patient Support Group) brings the latest in MDS Treatment from the Annual MDS Symposium in Valencia.
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The Haematology Institute Nurses and Allied health Professionals Group is hosting a one day event on 10th July 2017 at the Robens Suite, 29th floor, Tower Wing, Guy’s Hospital London SE1 9RT. The conference will celebrate the current contribution of nursing to the care of patients experiencing haematology disorders. With presentations from notable speakers and leaders […]
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It is with immense sadness that we announce the death of our past Chairman, Professor Rodney Taylor on 3rd May 2017, after his MDS progressed to AML.
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Are Revlimid and Lenalidomide the same drug? Yes, they are the same drug. Lenalidomide is the active substance in Revlimid. What is Revlimid? Lenalidomide is an immunomodulating agent, which operates on the immune system (the body’s natural defences). It works in a number of different ways: it blocks the development of abnormal cells, prevents the […]
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Dr. Christopher Dalley & Dr. Timothy Chevassut – Haematologists at Brighton and Sussex University Hospitals Trust and Royal Sussex Hospital NHS Trust – give an account of how they discuss diagnosis and treatment with their MDS patients. Watch the video and read the transcript below.
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