We are deeply saddened by the news that Sharon Berger passed away a few days ago. Sharon was one of the founders of the very original MDS patient group back in 2007, when that group was still in its infancy – together with Fiona Pirilla and Kes Grant.
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The following videos come from the annual UK MDS Forum Education Day 2016, which took place in London on 11th November 2016. The day is targeted at all haematologists in the UK and Ireland who deal with MDS patients. Its aim is to provide information and updates on the most advanced scientific and clinical research […]
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In the first video of this series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds talks to Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, about how important it is to be a well-informed patient. Watch the video and read the excerpts below.
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EuroBloodNet was launched at the third conference on European Reference Networks (ERNs) yesterday in Vilnius, Lithuania
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Sophie Wintrich, Chief Executive of MDS Patients Support Group interviewed Dr Catherine Cargo – Consultant Haematologist at St James University Hospital – Leeds. Watch the video and read the transcript below.
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Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all did it together. Thanks to colleagues at Anthony Nolan, all other blood cancer charities, […]
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The latest MDS UK Patient and Family Forum took place in Birmingham on the 4th of February. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment.
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In this presentation from the 2016 “European Focus on Myeloproliferative Neoplasms and Myelodysplastic Syndromes”, Dr. Fabio Efficace discusses the importance of quality of life as a treatment goal in myelodysplastic syndromes (MDS) When latest genetic analysis and therapeutic strategies are incorporated into MDS treatment the outcomes and quality of life in patients with MDS improves.Recent research trials have incorporated […]
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Researchers designed an antibody that recognises and destroys CD99-covered leukemia cells while sparing normal blood stem cells
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Dr. Garcia Manero, from The University of Texas MD Anderson Cancer Center, highlights some promising clinical data presented at the 58th Annual Meeting of the American Society of Haematology (ASH)
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