In the first video of this series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds talks to Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, about how important it is to be a well-informed patient. Watch the video and read the excerpts below.
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EuroBloodNet was launched at the third conference on European Reference Networks (ERNs) yesterday in Vilnius, Lithuania
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Sophie Wintrich, Chief Executive of MDS Patients Support Group interviewed Dr Catherine Cargo – Consultant Haematologist at St James University Hospital – Leeds. Watch the video and read the transcript below.
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Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all did it together. Thanks to colleagues at Anthony Nolan, all other blood cancer charities, […]
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The latest MDS UK Patient and Family Forum took place in Birmingham on the 4th of February. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment.
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In this presentation from the 2016 “European Focus on Myeloproliferative Neoplasms and Myelodysplastic Syndromes”, Dr. Fabio Efficace discusses the importance of quality of life as a treatment goal in myelodysplastic syndromes (MDS) When latest genetic analysis and therapeutic strategies are incorporated into MDS treatment the outcomes and quality of life in patients with MDS improves.Recent research trials have incorporated […]
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Researchers designed an antibody that recognises and destroys CD99-covered leukemia cells while sparing normal blood stem cells
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Dr. Garcia Manero, from The University of Texas MD Anderson Cancer Center, highlights some promising clinical data presented at the 58th Annual Meeting of the American Society of Haematology (ASH)
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Update 24 February 2017: NHS England reinstates funding to 2nd stem cell transplants thanks to your support! Read More Here Early in 2016 a MDS patient was denied a potentially life- saving 2nd bone marrow transplant despite showing a good chance of being cured by this 2nd treatment.After 4 months of waiting, spent in and […]
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Evidence tells us that when patients are actively involved in their own care, treatment and support can improve outcomes and experience for patients. Everyone involved in care should advocate for the experience, voice and presence of patients, carers and the public to make a real difference to research in the NHS in order to improve health […]
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