Vidaza / Azacitidine: Learn all about this drug

Vidaza and Azacitidine are the same drug Azacitidine is the official generic and non-proprietary name given to the drug active ingredient while Vidaza is its trade name. The drug is widely available in the UK for the treatment of MDS since its approval in February 2011 by NICE – the National Institute for Health and […]

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Jan Buchanan

It is with huge sadness that we announce the passing of Jan Buchanan. Jan had very recently stepped down from the committee of MDS UK Patient Support Group. Regrettably, shortly after, and just before Christmas, she suffered a brain haemorrhage from which she did not recover.

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MDS UK Patient Support Group Newsletter – December 2017

Read all about: MDS UK new Patron Caitlin Limmer AKA “The Force of the Limmer” and “Force of the Limmer”, the Race Director of Twickenham’s famous Cabbage Patch 10 Race and The Turks Head 10k. A campaign that was worth it: NHS England will fund 2nd stem cell transplants for patients whose blood cancer relapses. New […]

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MDS World Awareness Day 25th October – Flash Mob and more!

To celebrate MDS World Awareness Day a cheerful bunch from the Bearcat Running Club  stormed the Cabbage Patch Pub in Twickenham and started dancing to the tune of Gloria Gaynor “I am what I am”!! WATCH THE VIDEO: https://www.youtube.com/watch?v=2e9ZXUyrsSc Such was the impact that people were reported to donate spontaneously after the dance, without even been […]

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Have you ever visited an MDS Specialist Centre?

In the third in a series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds – talks with Sophie Wintrich about what seeking an MDS specialist opinion can do for a patient and how MDS Centres of Excellence work together with local hospitals. Watch the video and read the excerpts below. Prof […]

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What is CAR-T cell therapy? Learn how this immunotherapy works in blood cancer

Cell therapies, sometimes called “living therapies”, are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR-T cell immunotherapy. This type of targeted immunotherapy aims to boost the immune system by giving immune cells the information they […]

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Prof Bowen explains how new treatments for MDS are developed and the importance of clinical trials

In the second video of this series, Professor David Bowen, Consultant Haematologist at St James University Hospital, Leeds, explains why clinical trials are key in the development of new treatments for MDS.  Prof Bowen is an honorary professor of Myeloid Leukemia Studies and Consultant Hematologist at St. James’s Institute of Oncology, Leeds, in the United Kingdom. He is chief and […]

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The MDS cheer team was at the Cabbage Patch on October 15!

We are getting together for the Cabbage Patch 10 mile run on the 15th October to support our runners and shout out about MDS in the run-up to MDS World Awareness Day. Join us on the 15th of October to raise awareness and fundraise for MDS. Or why not having a go at dancing for […]

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Help improve the blood transfusion experience for MDS patients

Depending on blood transfusion has a negative impact on the quality of life of MDS patients, but it is unavoidable for many patients. That is the reason why a group of Canadian and United Kingdom haematologists are looking into running a series of studies to improve the red blood cell transfusion experience for MDS patients […]

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When is the right time to give a blood transfusion?

When the blood lacks enough healthy red blood cells or haemoglobin, anemia symptoms develop, typically fatigue, shortness of breath, weight loss, paler than normal skin, etc and a blood transfusion is considered. There is no set haemoglobin level at which a blood transfusion is given, but your doctor will assess your symptoms and you will […]

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