FT-2102: Clinical Trial Open to Recruitment

  1. SUB-TYPE OF MDS: Patients with Acute Myeloid Leukaemia or Myelodysplastic Syndrome with an IDH1 R132 mutation
  2. SEVERITY OF MDS: Intermediate, high risk or very high risk MDS as defined by the World Health Organization (WHO) criteria or Revised International Prognostic Scoring System (IPSS-R)
  3. NAME OF DRUG: FT-2102
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URGENT: A father of 7, recently diagnosed with MDS needs your help

This is an urgent appeal for stem cell donors, for a Dad who was diagnosed in July 2018 with a high-risk form of MDS, Myelodysplastic Syndromes, a rare form of blood cancer, that can progress to leukaemia. Damian is a father of 7 lovely children – aged 4 to 27.  Damian was told that without treatment, […]

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How is Quality of Life in patients with Myelodysplastic Syndromes (MDS) measured?

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? In this article David Steensma, MD FACP at the Dana-Farber Cancer Institute and Harvard Medical School, Boston, Massachusetts USA discusses how to incorporating the Patient’s Voice into MDS Care and Research. Measuring quality of life: how to capture […]

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Living with MDS: Top Tips to Improve Your Quality of Life

Having MDS will have impact on your daily life. Each person will cope in their own unique way. Not everything in this gallery will apply to you, but there might be feelings that you are familiar with. It is hard to directly “change an emotion”, while thoughts and behaviours are more easily changed. We hope […]

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Bone marrow donor drive at RAF Coningsby

On Thursday 22nd of November MDS UK was represented at a bone marrow donor drive at RAF Coningsby alongside the bone marrow donor charity, DKMS. The event was prompted by the husband of Emma Sheldon, Adrian Cooper, following his wife’s diagnosis of MDS. As a great number of patients will know, the initial emotions that […]

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MDS UK Patient Support Group Newsletter – November 2018

Read all about: Patient’s Stories: Kes Grant ‘Coping with long stays in hospitals…’; Andrew Scott Married to MDSDS; Tilly Tilbrook ‘How I felt about losing my hair…’; Christina Fowler ‘Decisions, decisions…’ Research: Prof D Wiseman Chronic Myelomonocytic Leukaemia (CMML), Prof D Steensma, Measuring quality of life; Prof T Chevassut The effects of vitamin C, Raqeebah […]

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