Financial Times article on Orphan Drugs

This article talks about various issues around rare conditions and the orphan drugs that are needed to treat those conditions. It deals with the difficulty in diagnosing rare conditions, the costs of drug development, the role of pharma companies, the investment needed, the cost-effectiveness process applied and what European governments and other stake-holders need to […]

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Patient Survey – participants needed

Patient participants needed for a survey regarding issues of access to medicines.

This survey is being conducted by a researcher at LSE – London School of Economics – as part of a study looking at problems patients have in accessing their medicines.

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Journalist interested in rare diseases

Rare Diseases UK have been contacted by Julie Cook, a freelance journalist for women’s magazines such as Bella and Women’s Own, who has an interest in rare diseases. She writes for the health pages of these magazines and is interested in doing an article on a family affected by a rare disease that they would […]

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