Issue date – 5 June 2020 Writing group: UK MDS Forum and NCRI MDS subgroup Consultants – please contact any member of the subgroup members for further advice if required, or: Prof David Bowen, Lead for Writing Group, Leeds. Dr Sally Killick, NCRI MDS chair, Bournemouth Dr. Dominic Culligan, UK MDS Forum Chair, Aberdeen This […]

Our colleagues in the USA offered a free webinar on Friday, May 22nd, 2020 on the impact of COVID-19 on the lessons learned for bone marrow failure patients and what patients should do to protect themselves from the virus. If you haven’t been able to attend the webinar, or would like to watch the presentation […]

In their most recent update from the 7th May 2020, NHS England have added MDS (Myelodysplastic Syndromes) specifically, to the government list of highly vulnerable people who should be shielding, isolating – and be receiving an official Vulnerable Letter. We have received many calls from MDS patients and members, reporting that they had not received a […]

Please find below the recording and the transcript from the The International Academy for Clinical Haematology (IACH) webinar, which took place on April, 2020 with Prof. Mohamad Mohty and Dr. Yolande Arnaul. The webinar focused on the psychological aspects of the pandemic. Dr Arnault is a clinical psychologist and practitioner. She is part of the […]

TO ALL MDS PATIENTS AND THEIR FAMILIES The government has lifted some shielding measures. Read here the government updated advice. There is still limited data on the impact of these measures. We therefore emphasize, as the guidance says, that people remain vulnerable and should continue to take precautions. See the first paragraph of the government […]

Message from MDS UK team – to help each other get through the next few weeks. Please stay home unless told otherwise by your clinical team. A letter should have been sent to you with instructions for your ongoing care. If you haven’t been contacted, you can register on gov.uk If you feel unwell – call […]

The questions below are transcribed from the AAMDSIF webinar which took place on March 13, 2020 with Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer from the Cleveland Clinic, edited for clarity and brevity. Thanks to our colleagues from AAMDSIF for sharing this with us. With respect to the guidelines for your specific case, the NHS […]

Dear all, In view of the many questions faced by all regarding coronavirus, our colleagues in the USA organised a free webinar last Friday, March 13, 2020 about the emergency of COVID-19 and the impact on bone marrow failure disease patients. To watch the recording, please follow this link: Webinar Recording The AA/MDS Foundation will […]