MDS Latest News
Issue date – 5 June 2020 Writing group: UK MDS Forum and NCRI MDS subgroup Consultants – please contact any member of the subgroup members for further advice if required, or: Prof David Bowen, Lead for Writing Group, Leeds. Dr Sally Killick, NCRI MDS chair, Bournemouth Dr. Dominic Culligan, UK MDS Forum Chair, Aberdeen This […]
Read full storyHowever it won’t be quite the same as pre-covid times. We asked the MDS experts to explain what patients may expect in the weeks and months to come. And – to remind all patients that despite covid, isolation, shielding and perhaps not seeing your usual clinical teams, it is still VERY important to communicate any […]
Read full storyOur colleagues in the USA offered a free webinar on Friday, May 22nd, 2020 on the impact of COVID-19 on the lessons learned for bone marrow failure patients and what patients should do to protect themselves from the virus. If you haven’t been able to attend the webinar, or would like to watch the presentation […]
Read full storyIn their most recent update from the 7th May 2020, NHS England have added MDS (Myelodysplastic Syndromes) specifically, to the government list of highly vulnerable people who should be shielding, isolating – and be receiving an official Vulnerable Letter. We have received many calls from MDS patients and members, reporting that they had not received a […]
Read full storyPlease find below the recording and the transcript from the The International Academy for Clinical Haematology (IACH) webinar, which took place on April, 2020 with Prof. Mohamad Mohty and Dr. Yolande Arnaul. The webinar focused on the psychological aspects of the pandemic. Dr Arnault is a clinical psychologist and practitioner. She is part of the […]
Read full storyDue to the Corona pandemic there is now a severe shortage of blood products as blood donor drives across the world are being cancelled. About 70% of all patients suffering from Myelodysplastic Syndrome are anaemic and become blood transfusion dependent during the course of their disease. Since their anaemia is “refractory”, they are in need […]
Read full storyTO ALL MDS PATIENTS AND THEIR FAMILIES The government has lifted some shielding measures. Read here the government updated advice. There is still limited data on the impact of these measures. We therefore emphasize, as the guidance says, that people remain vulnerable and should continue to take precautions. See the first paragraph of the government […]
Read full storyMessage from MDS UK team – to help each other get through the next few weeks. Please stay home unless told otherwise by your clinical team. A letter should have been sent to you with instructions for your ongoing care. If you haven’t been contacted, you can register on gov.uk If you feel unwell – call […]
Read full storyThe questions below are transcribed from the AAMDSIF webinar which took place on March 13, 2020 with Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer from the Cleveland Clinic, edited for clarity and brevity. Thanks to our colleagues from AAMDSIF for sharing this with us. With respect to the guidelines for your specific case, the NHS […]
Read full storyDear all, In view of the many questions faced by all regarding coronavirus, our colleagues in the USA organised a free webinar last Friday, March 13, 2020 about the emergency of COVID-19 and the impact on bone marrow failure disease patients. To watch the recording, please follow this link: Webinar Recording The AA/MDS Foundation will […]
Read full story