MDS UK Newsletters
MDS UK Patient Support Group Newsletter aimed at patients and their families:
Patients and families: Paper copies are available from our main office – for all UK editions.
Clinical staff: Please email us to order a stock for your waiting rooms. Clinical Staff Ordering Page
Patients and families: Please help us by checking if the newsletter is displayed at your hospital.
If it is not available, please let us know and send us the following details:
- Hospital address and exact department
- Name of staff we can send a stock of newsletters and leaflets
Fundraisers: Please let us know how many copies you wish. We’ll post them to you!
Read all about: Patient’s Stories – Living with MDS: Andy Veitch, Kevin Dwyer, Graham Cheyne, Stephen Rhodes Patients’ Poems – by Chris Davis, Kes Grant, Kate D and Shareen Vouvray. Editor’s Note: The poem “Heavy Luggage” was written by Shareen Vouvray. We do apologise for wrongly attributing it to Chris Davis on our Newsletter. Research […]Read full post
Read all about: Patient’s Stories – Living with MDS: Bergit Kuhle: B12 meets MDS; Michael Bower; Bernard E Burke; Shareen Rouvray – Part 1; John and Sandra; Poetry by Kate Research – Progress in the diagnosis and treatment of MDS: European MDS Registry, Prof David Bowen; Familial/inherited MDS: rare but important to keep in mind, […]Read full post
Read all about: Patient’s Stories: Kes Grant ‘Coping with long stays in hospitals…’; Andrew Scott Married to MDSDS; Tilly Tilbrook ‘How I felt about losing my hair…’; Christina Fowler ‘Decisions, decisions…’ Research: Prof D Wiseman Chronic Myelomonocytic Leukaemia (CMML), Prof D Steensma, Measuring quality of life; Prof T Chevassut The effects of vitamin C, Raqeebah […]Read full post
Read all about: Patient’s Stories: Reginald Hall, Reverend Kes Grant and Bergit Kuhle. MDS Research: Azacitidine Latest News, Personalised Medicine and EPO Treatments. Advocacy, Fundraising, Local News and much more.Read full post
Read all about: MDS UK new Patron Caitlin Limmer AKA “The Force of the Limmer” and “Force of the Limmer”, the Race Director of Twickenham’s famous Cabbage Patch 10 Race and The Turks Head 10k. A campaign that was worth it: NHS England will fund 2nd stem cell transplants for patients whose blood cancer relapses. New […]Read full post