Dr Martin Wermke explains how iron overload can affect the outcome of stem cell transplant

Dr Martin Wermke, Haematologist, University Hospital Dresden, Germany, explains the impact of iron overload in the blood in allogeneic stem cell transplant – and how that information can guide therapeutic interventions. Iron Overload: A Patient Story Bergit Kuhle’s experience with Chelation Therapy Bergit Kuhle Watch the latest videos on MDS Dr Martin Wermke explains how […]

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EPO (Erythropoietin) & other Erythropoiesis Stimulating Agents (ESAs) in the Treatment of MDS

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? In this article Dr Chris Dalley, Consultant Haematologist University Hospital Southampton (NHS Foundation Trust), looks at the use of conventional and new Erythropoiesis Stimulating Agents (ESAs) in the treatment of MDS. What are Erythropoiesis Stimulating Agents (ESAs)? Erythropoiesis (from […]

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MDS UK Patient Support Group Newsletter – May 2018

Our 8th edition of the MDS UK Newsletter is now out! Read all about: Patient’s Stories: Reginald Hall, Reverend Kes Grant and Bergit Kuhle. MDS Research: Azacitidine Latest News, Personalised Medicine and EPO Treatments. Advocacy, Fundraising, Local News and much more. CLICK ON THE IMAGE TO DOWNLOAD

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More Good News: The Cabbage Patch 10 Mile Race

We have 20 running places at the Cabbage Patch 10 Mile Race! MDS UK is delighted to announce that we have secured 20 running places in this year’s Cabbage Patch 10 mile race thanks to our wonderful supporter and Patron, Caitlin Limmer. We have a place for you The race takes place on 14th October […]

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Volunteer With Us

Could you help us to help you? We are looking for enthusiastic new volunteers to help with various aspects of our expanding patient services. Anything from Admin to Zen meditation, anywhere from Land’s End to John O’Groats. Volunteer with us Interested? Please send us details of any skills you think you can bring, your contact […]

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Vidaza / Azacitidine: Learn all about this drug

Are Vidaza and Azacitidine the same drug? Why does it have two names? Vidaza and Azacitidine are the same drug Azacitidine is the official generic and non-proprietary name given to the drug active ingredient while Vidaza is its trade name. The drug is widely available in the UK for the treatment of MDS since its […]

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Jan Buchanan

It is with huge sadness that we announce the passing of Jan Buchanan. Jan had very recently stepped down from the committee of MDS UK Patient Support Group. Regrettably, shortly after, and just before Christmas, she suffered a brain haemorrhage from which she did not recover. An inspired fundraiser, always positive and engaging Jan was […]

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Living with MDS: Top Tips to Improve Your Quality of Life

LIVING WITH MDS Having MDS will have impact on your daily life. Each person will cope in their own unique way. Not everything in this gallery will apply to you, but there might be feelings that you are familiar with. It is hard to directly “change an emotion”, while thoughts and behaviours are more easily […]

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