Join the Prudential 100 and raise money to help fight MDS

We wanted to you be the first to hear that registration is now open for Prudential RideLondon and we have 15 rider places this year! A true legacy of the 2012 Games, this year’s eighth edition will take place over the weekend of 15-16 August 2020. Ride the Prudential RideLondon-Surrey 100 – a 100-mile challenge on […]

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MDS UK London office has re-opened on January 6th

Happy New Year to you all. We’ve reopened our office, after a short break, on Monday 6th January 2020. Our contact details Telephone: 020 7733 7558 Email: info@mdspatientsupport.org.uk Our aims To provide a networking service through which those newly diagnosed with MDS may share their experience with fellow sufferers. To provide a help and advice […]

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Living with MDS: Top Tips

Having MDS will have impact on your daily life. Each person will cope in their own unique way. Not everything in this gallery will apply to you, but there might be feelings that you are familiar with. It is hard to directly “change an emotion”, while thoughts and behaviours are more easily changed. We hope […]

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A Festive Message from MDS UK

To all those awaiting results; those newly diagnosed; those undergoing treatment; all those with loved ones who have MDS; all those recently – or not so recently – bereaved; to those in remission, and to those given the coveted all-clear. We wanted to let you know that we will be thinking of you this festive […]

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Eden organised a fun Cèilidh Fundraising Event in aid of MDS UK

On the 16th October Eden Sheldon organised a fantastic Cèilidh Fundraising Event in aid of our charity. The evening was a lot of fun and Eden managed to raise an amazing £271.21! Eden told us she is looking forward to doing some more events in the future, which is immensely generous of her. We are […]

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MDS UK Patients’ Poems on MDS World Awareness Day

The 25th of October is MDS World Awareness Day Throughout the day, MDS UK and the international umbrella organisation MDS Alliance will posting on social media moving poems by our dear MDS UK member, Kate D, and other MDS UK members, written on the theme of living with Myelodysplastic Syndrome.  by Kes Grant Myelo Dysplastic […]

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Chemotherapy at home: less visits to the hospital and better quality of life

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Written by Janet Hayden – Lead Myeloid Clinical Nurse Specialist – King’s College Hospital MDS specialist nurse Janet Hayden gave two talks at our recent London Patient meeting at King’s College Hospital. The first one was a report about […]

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ACE-536-MDS-002 (Luspatercept)

  1. SUB-TYPE OF MDS:Lower Risk MDS patients who require red cell transfusions but have not received Erythropoietin
  2. SEVERITY OF MDS: IPSS-R Very Low, Low or Intermediate Risk MDS
  3. NAME OF DRUG: Luspatercept
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