Support Team MDS at the Great North Run on September 8!

Taking place on on Sunday 8 September 2019, the Great North Run is the largest half marathon in the world, taking place annually in North East England each September. And we have an amazing team running for MDS UK Patient Support Group: Kathleen Young Angela and Shari Stirling Lindsey Hall Tanya Ferris Mike Leigh Russell Cook

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Harmony: a European project with good news for MDS patients

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The Harmony Alliance is a first-of-its-kind partnership of over 80 private and public organisations aiming at enabling better and faster treatments for patients with blood cancers such as MDS. Patient Organisations have a very active role in Harmony, and […]

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The new generation of MDS diagnostics: the Myeloid Gene Panel

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Report from the MDS Education Forum that took place in November 2018. Interviews by Sophie Wintrich Chief Executive of MDS UK Patient Support Group. What are Myeloid Gene Panels and how are they used in MDS? One of […]

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Join Team MDS at London to Paris Bike Ride 15/07/2020 – 19/07/2020

We wanted to you be the first to hear that registration is now open on our iconic London to ParisTour de France Challenge for 2020! Taking place on 15 – 19 July 2020, this incredible adventure is our most popular cycling challenge and it’s easy to see why – with the the finale of the world’s greatest cycle race awaiting […]

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Missed the Harrogate MDS Patients & Family Forum? Catch Up Online!

The latest MDS UK Patient and Family Forum took place in Harrogate on Friday 22nd March. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment. The meeting was open to MDS patients and their guests, as well as clinical staff. Patients and their families […]

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Survey for AML patients to help measure the effects of new drugs for AML

Currently, several new drugs are being tested in clinical trials, aiming at improving the treatment of haematologic malignancies (HM). These trials, however, measure different results – also called treatment response, or outcomes – which makes it difficult to compare and combine all this information. Lars Bullinger (Charité Hospital in Berlin) makes the following observations: “For […]

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