Journalist interested in rare diseases

Rare Diseases UK have been contacted by Julie Cook, a freelance journalist for women’s magazines such as Bella and Women’s Own, who has an interest in rare diseases.

She writes for the health pages of these magazines and is interested in doing an article on a family affected by a rare disease that they would like to raise awareness of. The article could include the family talking about how a rare condition affects their lives and what help they get and how they can perhaps help others by raising awareness of the condition.

If you are interested in taking part, please contact Julie at with a brief overview of your experience and a contact telephone number. If she thinks that you may be useful for the article, she will be in touch to arrange a telephone interview at your convenience.

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