An opportunity for those affected by MDS to hear about the latest in MDS research and treatment

The next MDS UK Patient and Family Forum will take place in Harrogate, UK on Friday 22nd March, 2019 9.45 am – 16.00 pm

It will be an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment.

This FREE event will be held at the Crown Hotel Harrogate Crown Place, Harrogate North Yorkshire, HG1 2RZ

The meeting is open to MDS patients and their guests, as well as clinical staff across the regions of Yorkshire: York, Leeds, Harrogate, Hull, Bradford, Huddersfield and Wakefield.

Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues and their experience of living with MDS. New clinical trials, new diagnostic methods, therapies and treatment options will also be discussed.

The day includes presentations by MDS experts, guest speakers and patients on topics of clinical trials, new therapy options, including opportunities to ask questions and meet fellow patients, in our Quality-of-life session – Living with MDS.

Harrogate Patient and Family Forum Agenda

*** 10.00 Registration opens - Tea/Coffee - Book your questions opportunity ***

  • 10.20 Welcome and introductions, S. Wintrich, MDS UK - Patient Speaker: “Making sense of information after diagnosis” -
  • 10.30 What is MDS & current treatment options – with Q&A Prof David Bowen, Consultant Haematologist, St. James's Institute of Oncology, Leeds
  • 11.10 New advances in MDS and emerging treatment options – Speaker to be confirmed
  • 11.35 Research, trials and projects in MDS Q&A Speaker to be confirmed
    Patient input for design & revision of clinical trial documentation – Patient Claudia Richards & EU MDS Project – Leeds Research Nurse

*** 12.30– 13.30 * Free Lunch Provided***

  • 13.30 Patient Forum Discussion – Living with MDS Session - CNS, Leeds; S. Wintrich, MDS UK
    Patient speakers – “Coming to terms with MDS

*** 15.00 -15.15 Grab a tea/coffee/biscuit - mini break ***

  • 15.15 Specialist sessions (split workshop groups):
    Bone Marrow Transplant - YES: What you need to know and can expect regarding a stem cell transplant
    Dr Anjum Khan, St. James's Institute of Oncology, Leeds; Patient Speaker
    OR
    Bone Marrow Transplant - NOT for me: Options for those who cannot undergo a transplant, or opted against one
    Prof David Bowen, Consultant Haematologist, St. James's Institute of Oncology, Leeds; Patient Speaker
  • 16.00 MDS UK activities & Next steps for the region - MDS local groups, S Wintrich, Regional Coordinators, Patient and carers Creation of a Yorkshire Local Group
  • 16.40– End of sessions

Patients and their families can book a room at the Crown Hotel should they need to stay overnight. Below are the prices for the accommodation packages:

Friday 22nd March - Bed & Breakfast
Single Rooms @ £69.00
Double/Twin rooms @ £79.00
 
Saturday 23rd March - Bed & Breakfast
Single Rooms @ £99.00
Double/Twin rooms @ £109.00
 
To book a room, please call  01423 567755 and quote EVNT004367 (and mention you will be attending the MDS UK Patient and Family Forum).

Don't miss our Patient and Family Forum! Contact us to get invited. Telephone: 020 7733 7558 Email: info@mdspatientsupport.org.uk

Read The 2017 Forum Presentations

Clinical Trials: Potential Benefits and More

Why entering a Clinical Trial? Get to know more about the process and potential outcomes

Download PDF

Myelodysplastic Syndromes and their Treatment: an Update

Refresh your knowledge on MDS and get the latest on treatment options

Download PDF

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