Guidelines for the management of adult patients with myelodysplastic syndromes19 Jul. 2021
Research FOR Patients
-For an informed and empowered opinion-
Have you made your clinical paper accessible yet?
The British Society of Haematology has now issued their 2021 updated Guidelines for Myelodysplastic Syndromes (MDS).
These guidelines are written by experts in MDS and destined to be used by all UK haematologists to assist in the optimal care and treatment of their MDS patients.
These are guidelines, not rules, and the clinicians will adapt these to care for individual patients, depending on their exact sub-type, co-morbidities, circumstances and patient wishes.
Patients and families can of course read these guidelines, but remember these are not written for an audience of patients.
As patients or carers, we recommend you read our Patient Handbook, or browse articles and videos on our website, which are less technical. We will be reflecting these updates in our next edition of the patient handbook, due out in October 2021.
You can listen to the very good podcast by Dr Sally Killick, which is fairly accessible, despite also been aimed at a clinical audience.
Listen in particular to the beginning of the podcast, which clearly states that MDS patients should be seen by a haematologist specialising in MDS, and that every case should be discussed in an MDT (Multi-disciplinary Team meeting).