Cheltenham contacts please

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sophie
Posts: 249
Joined: 20 Nov 2008 14:05
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Cheltenham contacts please

Post by sophie » 06 Jan 2009 12:55

Hello, I am posting this on behalf of Margaret in Cheltenham, who does not have a computer, but would be glad to hear from other people in the area.Please leave a reply to this message, I will transmit to Margaret.
Thanks
Sophie
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Barbara
Posts: 2
Joined: 01 Feb 2009 22:46

Re: Cheltenham contacts please

Post by Barbara » 01 Feb 2009 22:56

Hi Sophie
I am more than willing for you to pass on my details to Margaret. Tewkesbury is only 11 miles away from Cheltenahm where I attend hospital for my MDS -5q treatment. MY contact details are as follows:

Barbara Fryer
Tel: 01684 299258

Thanks

Barbara
Barbara
Posts: 2
Joined: 01 Feb 2009 22:46

Re: Cheltenham contacts please

Post by Barbara » 01 Feb 2009 22:56

Hi Sophie
I am more than willing for you to pass on my details to Margaret. Tewkesbury is only 11 miles away from Cheltenahm where I attend hospital for my MDS -5q treatment. MY contact details are as follows:

Barbara Fryer
Tel: 01684 299258

Thanks

Barbara
Eleanor Rowat
Posts: 1
Joined: 14 Feb 2009 16:57

Re: Cheltenham contacts please

Post by Eleanor Rowat » 27 Feb 2009 17:36

I would like to contact Barbara Fryer as I also have MDS 5q- syndrome and after being told by my Consultant that Revlimid was the way forward my PCT refused the treatment. I am now blood transfusion dependent, 3 pints every 3/4 weeks and have to use a syringe driver seven days a week to take away the iron overload plus other drugs.Look forward to hearing from you.
Regards,
Eleanor
sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Re: Cheltenham contacts please

Post by sophie » 02 Mar 2009 11:55

Hello Eleanor - please feel free to call Barbara Fryer - she actually left her home phone number in the message above.I know she will not mind being called directly.

Thanks
Sophie
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Re: Cheltenham contacts please

Post by sophie » 02 Mar 2009 11:55

Hello Eleanor - please feel free to call Barbara Fryer - she actually left her home phone number in the message above.I know she will not mind being called directly.

Thanks
Sophie
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
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