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- Joined: 28 Sep 2010 15:43
has anyone had a course of azaitidine, how did they get on and what side effects
were there any info welcome
thanks harold hill
- Posts: 646
- Joined: 01 Dec 2009 21:52
- Location: Essex
Please see the post by David in the "My Experiences" section. It's called "18 months leading to Vidaza" (which is the manufacturer's name for azacitidine).
Also, click on this link below to see an article about Professor Rodney Taylor who was given azacitidine and campaigned successfully for NICE to fund the drug through the NHS.
http://www.dailymail.co.uk/health/artic ... -NICE.html
- Posts: 18
- Joined: 07 Apr 2011 00:20
My mum started her 1st course of Azatidine treatment Monday 10th May and her last day is today, Tuesday 17th May. 2 injections of the drug daily for 7 days. The drug is very thick and tends to sting as it is administered, mum is very thin due to weight loss which made it quite painfull for her. The injection site wounds, which are in her stomach are raw and very sore to touch. (We were told this would happen)
Mum has had no sickness, though she has sickness tablets to take while undergoing treatment. constipation is a problem though again mum has tablets for that as well. No appetite is our major concern at the moment which we are seeing someone about today, the tiredness has increased but again we were expecting this.
On the whole, mum is coping wonderfully with this new drug.
After the final injections today Mum will have 28 days off and then back for the second course.
Hope this little information has helped.
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- Joined: 08 Jan 2011 18:52
good health. Unfortunatley his bloods deteriated again but he was not allowed any further azazitidine due to cost and had to undergo 2 courses of intensive chemotherapy for at this time he was diagonised as having aml. It was a rough ride for the next 6 months but now he is fit and well, transfusion free and on 3 monthly visits to the specialist the last visit being yesterday. Results, specialist over the moon with blood results . He is fit and wealth and we are off to France next week for a well deserved holiday. Hope this puts your mind at rest. He has always been very positive about his condition and as always said that they must have the wrong bloke. Positive thinking I think helped a lot. Hope this story helps to put your mind at rest it is not easy but with positive thinking you can get there in the end.
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