Rare Disease Day
4 receptions will be organised throughout the country on 4 separate days to raise awareness of rarer conditions such as MDS.
If you are able to attend on of the following days - please reserve your place as soon as possible - there is a high demand for them apparently!
And please do invite your MP to join as well.
- Scottish Parliament: 22nd February 6:30pm – 8.30pm
- Westminster: 28th February 4pm – 6pm
- Northern Ireland Assembly: 3rd March 12pm – 2pm
- Welsh Assembly: 16th March 12pm – 2pm
Please note that you must register in advance to attend these events. To register please send your name, address and contact email/telephone to:
- Scottish Parliament event:
scotland@raredisease.org.uk (Natalie Frankish – 0131 651 4805)
- Westminster event:
assistant@geneticalliance.org.uk (Paula Barbosa – 020 7704 3141)
- Northern Ireland Assembly event:
stephen@raredisease.org.uk (Stephen Nutt – 020 7704 3141)
- Welsh assembly event:
williamsbg@cardiff.ac.uk (Buddug Williams – 02920 687 646)
Full details and website:
http://www.rarediseaseday.org/country/u ... %20kingdom
This information has also been posted on your website and Facebook
The Independant newspaper will run a supplement on Rare Diseases on the 28th February - and MDS UK will feature in an article.