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my husband has mds

Posted: 30 Sep 2010 12:10
by hebeho27
My husband has recently been diagnosed with low risk RA. It appears that his blood tests were abnormal 4 years ago, but his G.P. didn't notice this. He has no symptoms and we are waiting to see his specialist in October for a check up. We do not know the results of his chromosome tests yet, and are not sure what his blood test results are. His specialist told us that he had a median survival rate of 4 to 7 years, and then started telling us about how it could develop into A.M.L. He then told us to go home and forget about it, enjoy ourselves and go on holidays. I think we need a second opinion, my husband is 66 and very fit. I need more information but don't want to depress myself by looking on internet sites.

Re: my husband has mds

Posted: 01 Nov 2010 10:18
by Sophie
Dear Hebeho27,
please contact me for a referral to a centre of excellence for MDS and for an information pack on MDS.
020 7733 7558
or email me on
swintrich@mds-foundation.org
Thanks,
sophie