Moderator: Steering Committee
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- Joined: 09 Oct 2018 09:06
I am Amanda, I'm 22 years old from Surrey, I am currently studying for a masters and just moved away from home for the first time. I was diagnosed with hypoplastic MDS/ severe aplastic aneamia about 2 years now, when first emitted all my levels were very low. Luckily I've responded to ciclosporin so my levels remained stable.
I am currently a quarter of the way through being weened off the meds, with a year and a half to go. I have dealt with the medication well physically, but every doctors appointment I get very anxious and stressed, my mental health has definitely been affected since being diagnosed.
How do people deal with the mental problems that arise with the diagnosis?
Thanks in advance
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- Joined: 20 Feb 2018 16:21
I read you’re message and then moved onto something else, because I didn’t know how to answer. That was wrong, but I still don’t know how to answer.
So young ,and MDS does affect us all on this site in varying degrees as you will discover.
I wonder if you have been in contact with Sophie at Kings College Hospital?
Sophie Wintrich, CEO MDS UK Patient Support Group, who I’m sure will be able to offer you help and guidance.
Support will be there for you.
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