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Website for electronic copy of "Treatment we need" booklet
If you are experiencing problems with PCT's (Primary Care Trust) refusing to fund a particular treatment on the NHS, there is a booklet available to help you to apply for exceptional funding for treatment.
The booklet contains background information, a glossary of terms, a step by step of the whole process and template letters.
This may be particularly relevant at the moment for treatments not yet recommended by NICE - even if your consultant is recommending the drug.
This booklet has been written by a barrister - Peter Telford - who is also a member if the National Alliance for Rare Disease.
He has also written another booklet called "Your Patients Right to Treatment" 2008 - for consultants.
Please contact us for a hard copy of the patient booklet - or pick one up at one of our patient forums.
The next patient forum is in Cambridge on the 20th November.
020 7733 7558
For any queries:
Call 0207 733 7558
Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
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