Hi Folks
Have been reading some of the forum posts which I do from time to time and find them very helpful. I had a checkup with my Consultant Haemotologist on 15th January 2013 and he was happy with my blood, although my neutrophils are still very low so I am subject to lots of infections. I also get quite tired on occasions so just rest and take it easy. Generally I am fine at the moment and my next appointment is in July. I have gained some weight but my skin is still a big problem with the eczema type breakouts which are very uncomfortable. The dermatologist can't seem to find any cause from biopsies taken so I just keep using the Fusibet cream and Dermol which eases the situation. I'm due to go back to them at the end of April to see the dermatologist. My next Cyprus holiday is in May so I am hoping the sun and salty sea cures my skin again as it did last year - at least it gives me some respite. My sister is in New Zealand on holiday at the moment and she met and chatted to a lady with MDS - no doubt I will hear more when she gets home. This lady drinks coconut water which she finds helpful.
Just thought I would give an update and stay in touch.
All the best to all on the Forum.
Andy Pandy
- Board index
-
- It is currently 28 Mar 2024 13:41
- All times are UTC
Re: MDS RCMD - Feeling quite well (65) now 66!!
Where the MDS variant falls outside of the currently known categorisation, or for those rarer variants not covered elsewhere in the forum
Moderator: Steering Committee
-
- Posts: 26
- Joined: 30 Nov 2011 10:47
- Location: Eastbourne
Re: MDS RCMD - Feeling quite well (65) now 66!!
Post by Andy Pandy » 01 Mar 2013 14:51
Dx AML May 2014 13% blasts, BMB Apr 2015 3% blasts and bloods very good. Azacitidine chemo
Return to “MDS Type: Unclassified and other variants”
Jump to
- About the Forum - PLEASE READ THIS FIRST
- Messages and Links From the Support Team
- Introductions and General Chat
- ↳ Say hello
- ↳ Our Stories
- ↳ General Chat
- Events and Fundraisers
- Regional Meeting Groups
- ↳ Bournemouth Group
- ↳ Essex Group
- ↳ Ireland and Northern Ireland Group
- ↳ Kent Group
- ↳ London Group
- ↳ MDS UK Annual General Meetings
- ↳ MDS Zoom Café Online
- ↳ Midlands Group
- ↳ Oxford Group
- ↳ Scotland Group
- ↳ Southampton Group
- ↳ Local Group coordinators
- Childhood MDS
- CMML
- COVID-19 topics
- The Diagnosis Process (incl Biopsies; IPSS/Risk groups; Progression of MDS; Mutations)
- ↳ Bone Marrow Biopsies
- ↳ IPSS Risk Groups / IPSS-R v IPSS-M
- ↳ Mutations
- ↳ Progression of MDS
- Family, Friends and Carers
- Fatigue and MDS
- MDS and Autoimmune Conditions
- MDS Types
- ↳ MDS Type: General
- ↳ MDS Type: Watch and Wait
- ↳ MDS Type: 5q-
- ↳ MDS Type: SLD / MLD
- ↳ MDS Type: With Excess Blasts
- ↳ MDS Type: With Sideroblasts / RARS / SF3B1 mutation
- ↳ MDS Type: Unclassified and other variants
- ↳ MDS Type: ICUS, CCUS, CHIP
- ↳ MDS Type: Familial MDS
- MDS Treatments
- ↳ MDS Treatment: Azacitidine/Vidaza
- ↳ MDS Treatment: Blood Transfusions
- ↳ MDS Treatment: Iron Overload & Chelation
- ↳ MDS Treatment: Lenalidomide/Revlimid
- ↳ MDS Treatment: Luspatercept/Reblozyl
- ↳ MDS Treatment: Supportive care medication (EPO, GCSF, antibiotics)
- ↳ MDS Treatment: All Other Treatments
- ↳ MDS/AML Treatment: Azacitidine and Venetoclax
- Nutrition and General Health Supplements
- Research and Clinical Trials
- ↳ Clinical Trials
- ↳ Research
- Stem Cell Transplants
- ↳ Stem Cell Transplants: General
- ↳ Stem Cell Transplants: GVHD (Graft v Host Disease)
- ↳ Stem Cell Transplant : Decisions
- Travel or Health/Life insurance for MDS
- Problems using the forum
- Contact requests - members only
- Bereavement
Who is online
Users browsing this forum: No registered users and 1 guest