Contacts in kent

Post here to make contact with others in specific regions of the UK.

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Goldtooth
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Joined: 01 Apr 2015 10:15
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Contacts in kent

Post by Goldtooth » 17 May 2015 16:58

Are there any MDS patients in Kent?
Kes
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Joined: 14 Jul 2012 13:05
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Re: Contacts in kent

Post by Kes » 31 May 2015 22:20

Hi,

I live in South-East London but work in Maidstone. I'm sure there must be others but there is not good signposting to this group yet.

Cheers

Kes
I was diagnosed initially with RA. Now I'm told it RCMD with hypocellular marrow. It seems I also have a big autoimmune component to my MDS with lots of accompanied joint pain[/color]
seanieb76
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Joined: 18 Jun 2015 21:00
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Re: Contacts in kent

Post by seanieb76 » 20 Jun 2015 19:35

Hi,

I'm not based in Kent but East Sussex and not far from the border.

Sean
Kes
Posts: 11
Joined: 14 Jul 2012 13:05
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Re: Contacts in kent

Post by Kes » 21 Jun 2015 00:04

Hi

I know Sophie was keen to start a group in Kent at one point. If there is enough of ussube we could meet. Do you know of any others?

Cheers

Kes
I was diagnosed initially with RA. Now I'm told it RCMD with hypocellular marrow. It seems I also have a big autoimmune component to my MDS with lots of accompanied joint pain[/color]
Russell
Posts: 52
Joined: 15 Apr 2010 16:56
Location: Stoke Poges, Bucks
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Re: Contacts in kent

Post by Russell » 21 Jun 2015 15:22

Sounds like a plan everyone! There's a Patient Forum in October - if we are not ina position to set up something sooner why not come to that and we can all discuss what can be done?

Russell
Age 55
RCMD 2009 at age 49
1x MUD BMT 2010
1x MUD SCT 2010
1x Haplo Transplant 2010
4 Marathons
and
4 other Half Marathons, a 10 miler and a Spartan Race!
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