For Sophie

Post here to make contact with others in specific regions of the UK.

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Sha
Posts: 5
Joined: 22 Mar 2013 21:18
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For Sophie

Post by Sha » 04 Apr 2013 00:33

Sorry, I couldn't figure out any other way to contact you, as Chris suggested. My husband is newly diagnosed with RARS-T And has the gene mutation JAK2. Can you help me with information?
Thanks,
Sharon
janetstanford
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Joined: 01 Nov 2010 17:54
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Re: For Sophie

Post by janetstanford » 04 Apr 2013 08:38

Hello Sharon
GO into section above this on front page :about the forum; and in there is post from Sophie posted in the last couple of days and it gives the e-mail address you can contact her on ( and the phone number i believe ) this may be quicker for you ...
good luck
Janet :)
chris
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Joined: 01 Dec 2009 21:52
Location: Essex
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Re: For Sophie

Post by chris » 04 Apr 2013 20:36

HI Sharon and Janet

Janet - thanks for pointing Sharon in the right direction!! I should have put Sophie's contact details in myself. Here they are just in case:


Tel: 020 7733 7558
Email: mds-uk@mds-foundation.org

Chris
Chris. (F) Age 69 (2019). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
Sha
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Joined: 22 Mar 2013 21:18
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Re: For Sophie

Post by Sha » 04 Apr 2013 23:30

Thank you both!
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