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- Joined: 02 Mar 2016 22:26
- Posts: 11
- Joined: 13 Nov 2014 11:30
I am aged 57 and am an MDS patient, on azacitidine with a view to have a stem cell tranplant in near future.
In early October 2014, I had a routine blood test because I had developed acute Psoriasis and was feeling generally washed-out and suffering night sweats. Within two weeks, I was sat with my wife in the Haematology Department of our local hospital in Exeter feeling pretty scared when the initials MDS were mentioned in connection with my own symptoms.
I am now on my journey towards an SCT with 2 potential stranger donors identified by Kings, London. I have had 6 cycles of Azacitidine.
Thanks to a very supportive employer. I am working part-time [about 50%] and have changed roles. My colleagues have been very understanding and have tried to understand my amateurish explanation of MDS.
I do have a 'story' published on the Forum under News / Patients Stories.
- Posts: 11
- Joined: 14 Jul 2012 13:05
I'm in London. I'm now 51 and was diagnosed aged 35. Are you aware of the patient support group meetings? That can be a good way of making contact with other local people. Also there is a Facebook page which again is a great source of company for those of us that share the road less traveled.
Hope you make some connections.
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