Press articles about CML patient being denied access by NICE

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sophie
Posts: 249
Joined: 20 Nov 2008 14:05
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Press articles about CML patient being denied access by NICE

Post by sophie » 08 Jan 2010 16:15

This CML (Chronic Myeloid Leukaemia) patient is facing similar issues as our MDS patients with azacitidine, as NICE's preliminary decision is NOT TO recommend 2 drugs that can treat this condition.
http://www.thisislondon.co.uk/standard/ ... entence.do
http://www.cmlsupport.org.uk/?q=node/1302
http://www.yourlocalguardian.co.uk/news ... ing_drugs/


For MDS and azacitidine - we are currently awaiting NICE's decision whether to recommend the drug or not for NHS patients.
The 3rd hearing has taken place yesterday, 7th Jan 2010.
We should have the result of this decision in about 2 weeks time.

If you have been denied access to azacitidine recently, please contact us

Please also sign our petition, requesting azacitidine to be made available on the NHS.
We need as many signatures as possible!
Please ask your friends, families, colleagues to sign as well:

http://www.mdspatientsupport.org.uk/Vid ... ition.html

Thank you
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
andmcn
Posts: 5
Joined: 08 Jan 2009 15:27
Location: Welwyn Garden City

Re: Press articles about CML patient being denied access by NICE to drug he needs

Post by andmcn » 28 Mar 2010 16:23

A very good article in The Mail on Sunday today, "A new bone marrow drug alternative to chemotherapy is saving my life. So why has it been rejected by NICE?"
You can read it here.

http://www.dailymail.co.uk/health/artic ... -NICE.html

You may have to cut and paste the link in to your browser.

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