How to receive an MDS Information pack and eNewsletter

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Joined: 20 Nov 2008 14:05

How to receive an MDS Information pack and eNewsletter

Post by sophie » 02 Aug 2013 11:51

Dear new online MDS forum users,

to receive an information pack, and our monthly eNewsletter, you must contact the main office in London, at King's College Hospital.
This online MDS forum is anonymous and therefore the main office will not have your contact details.

The online forum is there for patient to patient contact and support.
Many users are very well informed about MDS - but the forum is NOT checked for clinical accuracy.

If you do require general information about MDS or need advice - please do contact us first.

We will not know about you unless you email or call us with the following information:
- Surname, First name
- Postal address
- Telephone number
- Email address (if you use one regularly)

You can register online: ... relatives/
Or email our Membership Officer:

It is important you register with the main office, as we use this information to count how many people we have on our list. This helps us do determine how well our information gets distributed in all of the UK - and how many patients and families we are able to help.
we also use this to have a better idea of numbers of MDS patients in the country - as there is no official registry in the UK so far.
Please help us by contacting us at least once - so we know of you.
If you do not wish to receive emails or newsletters from us - let us know.

Thanks for your cooperation.

We look forward to hear from you.
Sophie - Patient Liaison
Call 0207 733 7558

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Posts: 1
Joined: 08 Mar 2018 13:36

Re: How to receive an MDS Information pack - new forum users

Post by LHWS12 » 08 Mar 2018 14:03

thank you for the information. I am new at this having only recently in early 2017 been diagnosed so I will be using the forum regularly to hopeful get clarity. :)
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