Please share your experience of using this particular MDS drug - sometimes referred to as "chemotherapy". If you have general questions about azacitidine, please check our website, our Patient Handbook or call us. For personal clinical queries - always discuss with your haematologist or nurse.
Moderator: Steering Committee
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- Joined: 23 Sep 2020 21:13
I am a brand new member and am a carer for my husband who was diagnosed with MM February 2015, tandem stem cell transplant Nov 15 and March 16 and 4+ years of reasonable stability now diagnosed with MDS Intermediate Stage 11. Bit of a body blow to say the least. My husband Richard is 74. He has just started his treatment last Monday so is on his 2 days off. A bit of a wobbly start, sickness etc but is suffering fatique, which he had from MM and it is worse now. Is there anyone else on here with MM as well and now MDS? Worried just doesn't cut it!!
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