Moderator: Steering Committee
- Posts: 1
- Joined: 19 May 2015 15:22
- Posts: 249
- Joined: 20 Nov 2008 14:05
very sorry to hear about your really difficult situation.
If you could give us a call, we'd like to discuss this in more detail and see what else can be done for you and your mother.
As a main carer, you are entitled to assistance, and some respite care.
You should also have been given the name and telephone number of the nurse specialist at the hospital - in case you needed assistance or advice.
Is there a palliative care team at the hospital?
Macmillan nurses are also available over the phone, if none are available at the hospital.
Is the GP any help?
Please ring us on 02077337558.
Look forward to talking to you.
For any queries:
Call 0207 733 7558
Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
- Posts: 25
- Joined: 23 Dec 2013 13:18
Very sorry to hear of your mums problems - Sophie's advise is well worth taking. My sister and I looked after our mum when she had vascular dementia and that on its own is very distressing. My sister found it harder to cope than I did. I had the advantage of a good local mental health team who gave me a lot of advice and information and I would see if your local mental health trust can give you any help. I also found social services very helpful - the social worker they assigned to mum helped us get a lot of medical aids, full care allowances and was also a great support for my sister and I. My own GP surgery is very good and geared up to help with the sort of things you need but my mothers surgery was totally useless and their attitude was 'we are doing you a favour just by being here'. I felt that they really just wanted to say go away and don't bother us when I rang to get a nurse.
I hope you can get some help, do talk to the local macmillan nurses, social services and the mental health trust for your area - you certainly deserve a lot more than you are getting.
One thing I was told with regard to vascular dementia is that you have to learn to treat them with the respect their age deserves while remembering that when they are 'bad' they have the understanding and behaviour of a three year old and its not mum thats talking but a 3 yr old doppleganger.
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