Myeloproliferative Disorders.

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Freddy

Myeloproliferative Disorders.

Post by Freddy » 05 Sep 2013 19:32

Hi Everyone,

Can anyone please give me information on Myeloproliferative Disorders or point me towards any accurate and clear information.

I have searched the internet and it all seems a bit confusing between MPD and MDS.

As I understand it, CMML is a sub group of MPD.

Thanks. Freddy.
sophie
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Joined: 20 Nov 2008 14:05
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Re: Myeloproliferative Disorders.

Post by sophie » 06 Sep 2013 15:40

Dear Freddy,

we have a link on our website regarding the CMML Factsheet produced by LLR:
MDS UK Webpage:
http://www.mdspatientsupport.org.uk/wha ... -material/
pointing to LLR webpage:
http://leukaemialymphomaresearch.org.uk ... 011__3.pdf

There is also MPD Voice - which is a support group dedicated to myeloproliferative disorders.
http://www.mpdvoice.org.uk/
They can help as well.

Please call us if you have any queries.
Look forward to hear from you if you decide to call.


This online forum is there generally to provide patient to patient emotional support.
For anything else - such as queries about MDS definition or access to clinical care - please always call us on the main telephone line - where we can advise further - or refer to clinical staff suitably qualified to help.
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Freddy

Re: Myeloproliferative Disorders.

Post by Freddy » 06 Sep 2013 17:29

Hi Sophie,

Thank you for the information and the links to web sites.

Kind regards, Freddy.
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