Moderator: Steering Committee
- Posts: 249
- Joined: 20 Nov 2008 14:05
Monday 25th March 2013 - 3pm-6pm
Monday 15th July 2013 - 3pm-6pm
Monday 11th November 2013 - 3pm-6pm
Location: King's College Hospital, Cicely Saunders Institute, Dinwoodie Multifunction Room
These are all joint Aplastic Anaemia/MDS meetings - for an initial introduction session - followed by individual AA and MDS groups with the respective Clinical Nurse Specialists.
We want to hear from you about topics you'd like to hear about and discuss.
Suggestion so far: How to cope with feelings of anxiety re diagnosis and the future
This would be a session led by KCH counsellor Philip Alexander.
Please post comments or suggestions here.
We have also some volunteers willing to help lead this London group:
Donna Beeden - MDS patient who had a bone marrow transplant at King's 18 years ago (and feeling great)
Joyce T - AA patient
Roseanne F - MDS patient on aza
Norman H - MDS patient - on Watch & Wait
Thank you to all 4 of them - we look forward to working with you for the next 2 meetings.
MDS UK team
AA CNS Nana Benson Quarm
MDS CNS Geke Ong
Users browsing this forum: No registered users and 1 guest