Feedback on our MDS Patient Booklet please

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Joined: 20 Nov 2008 14:05

Feedback on our MDS Patient Booklet please

Post by sophie » 01 Mar 2017 21:20

Dear Forum users,
for those of you who have read our Patient Handbook on MDS - could you please help us by replying to a few questions?
We need some satisfaction feedback please - for us and for the different authors who have contributed to the book. :geek:
This is really important for all of us - and for future readers.
We are also looking at doing a revised edition soon - with perhaps more info on CMML.

So - tell us if :
- you think the book needs some improvement?
- if certain areas are unclear?
- you have problems understanding certain chapters?
- or you'd like more info on a particular topic?
- anything else?

Now is the time to tell us ;) via the Survey Monkey link below:

:o If you have NOT yet read our booklet - please take a look at the online version: - it is the one called:
"Understanding Myelodysplastic Syndromes".
Then please answer the Survey Monkey questionnaire :)

Many thanks everyone :D
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Posts: 2
Joined: 15 Feb 2016 19:22

Re: Feedback on our MDS Patient Booklet please

Post by marka1337 » 06 Sep 2017 21:59

Hi Sophie, I found the booklet very interesting it also helped my wife to understand what MDS is. It is also non-sensational which is a calming influence compared to reading what's on some American websites.
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