Moderator: Steering Committee
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- Joined: 05 Nov 2018 09:54
MDS online Patient Meeting - Northern Ireland and Ireland
10.30am on Wednesday 9th December using Zoom
This is an online meeting for MDS UK registered members only, for the areas of Ireland and Northern Ireland.
Several MDS nurses will be attending part of this meeting for a Q&A session, followed by peer to peer chat.
Family members welcome to join.
Technical assistance if required - and 15min prior to the meeting time
Please register in advance for this meeting by clicking on this link:
https://us02web.zoom.us/meeting/registe ... yNhJkeMyR4
MDS Patient and MDS UK Local Group Coordinator for Kent.
2018, October: Diagnosed (aged 54) with MDS-MLD (was MDS-RCMD).
Haemoglobin and Neutrophils both affected.
Chromosome gain +1q21, and genetic mutations ASXL1 and U2AF1 identified.
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