Moderator: Steering Committee
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- Joined: 20 Nov 2008 14:05
Although NICE guidelines do apply in Northern Ireland as well, implementation is not viewed as strictly.
The Cancer Drug Fund (CDF) for England and Wales does not cover Northern Ireland - and in December 2011, a parliamentary motion/request was made to set up a Cancer Drug Fund for Northern Ireland specifically.
This CDF would need to be in the order of 3 to 6 Million GBP.
Azacitidine might then be more easily available in NI - and prescribed more widely, offering Intermediate 2 and high-risk MDS patients more than just supportive care with transfusions.
If you are an Intermediate 2 or High risk MDS patient - please contact us - as we would like to push the Government to make funds available for such cases.
Not having access to these drugs in just another case of postcode lottery.
Please contact us on email@example.com
or call us
For any queries:
Call 0207 733 7558
Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
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