Moderator: Steering Committee
- Posts: 67
- Joined: 22 May 2013 14:25
I wish I'd gone sooner to a COE and I'd strongly advise other MDS sufferers to think about it.
I feel much better able to cope with forthcoming problems as I know they will arise. I cannot be one of those people who think "If I don't know about my illness then I won't worry about it." I think we can all help ourselves to live as long as possible with this condition and that ignorance is not bliss.
list of infection in past 10 months:
4 lots of Cellulitis (one so bad I was on 4000mg of antibiotics four times a day for 3 weeks and at one time they considered hospilalising me the only reason they did not was that I'd been on oral antibiotics too long. I had to see my GP every day and at first twice a day for him to monitor me.
2 suspected fleabitis again high doses of antibiotics,
lots of water works infections
infection in the bone in my jaw from an infected tooth this had to be removed in hospital after I'd been transfused with 2 lots of platelets.
Multiple thrush each end
I've hardly gone 2 weeks before I'm back on antibiotics.
Please look after yourselves and consider going to a COE there is a lot more information available there.
Life is for living
- Posts: 75
- Joined: 04 Mar 2013 13:01
- Location: South East England
So glad you had a good visit to your COE. It's so nice to discuss things with those who know what we are talking about isn't it?
69 yrs hubby - CMML 1 dx Feb 2013
raised Monocytes was watch and wait
Nov 13 hydroxycarbamide.
Jan 14 blood OK back on w&w
Jan 19 disease advancement to CMML-F (fibrosis)
- Posts: 22
- Joined: 01 Oct 2012 14:08
I am so glad that you had a good visit to the Centre of Excellence in Cardiff. Getting there must have been an effort if you needed to stay overnight but at least you are feeling better about things now.
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