Recently diagnosed son-in-law

Please post here your experiences of MDS as a patient, carer, family or friend

Moderator: Steering Committee

Posts: 6
Joined: 11 Apr 2013 12:12

Re: Recently diagnosed son-in-law

Post by susiem48 » 19 Jul 2013 16:18

Hi Fiona,

Many thanks for your good wishes and I wish you all the very best for the future.

Posts: 249
Joined: 20 Nov 2008 14:05

Re: Recently diagnosed son-in-law

Post by sophie » 30 Jul 2013 17:04

Dear all,
I just moved the last few posts on lenalidomide to the 5q- folder - for them to carry on the conversation there.
Sorry about that - just makes it easier for people to find the right information.
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Posts: 194
Joined: 16 May 2011 11:33

Re: Recently diagnosed son-in-law

Post by Jayne » 31 Jul 2013 20:25

Hi Sue

I'm so glad to hear your son in law is home and things are going well. Please don't be dis-heartened by my blog, it isn't meant to be a downer....I do feel on the whole really well. The DLI was always on my drugs plan. Your son in law will have a drugs plan covering 180 days and it will mention that DLI may be required.

I hope he continues to do well.

Jayne xxxx
Feb 2011 MDS RCMD. Jan 2012 RAEB.
Feb 2012 - 2 lots of chemo each 4-6 weeks in hospital to destroy leukaemic cells resulting in remission from AML.
July 6 2012 - Stem cell transplant
Doing very well, feel great
Age 43.
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