Please post here your experiences of MDS as a patient, carer, family or friend
Moderator: Steering Committee
- Posts: 76
- Joined: 11 Aug 2011 17:51
Well done you! What a fantastic achievement.
Hope the blister isn't too uncomfortable.
Sarah Reakes x
Aged 62. Diagnosed with MDS 5q-, June 2011 & been on Wait and Watch regime On 25/11/14 told disease had progressed to High Risk with 15-20% blasts. Starting Intense Chemotherapy on 20/1/15 prior to SCT. Live in Yatton near Bristol/Clevedon.
- Posts: 624
- Joined: 01 Dec 2009 21:52
- Location: Essex
Bloomin' well done!! What a hero to struggle on through cramp and blisters. Hope you are having some hot baths and lots of relaxation to treat yourself. We are so impressed.
Very best wishes
Chris. (F) Age 69 (2019). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
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