Moderator: Steering Committee
Caringbridge website, is against my name: GavinHepburn
- Posts: 194
- Joined: 16 May 2011 11:33
I've just checked your caringbridge website and hope that you are still progressing well and feeling good?
Wising you all the luck in the world. Keep visualising your life as you want it to be and every day will be a step closer to your dream.
Feb 2011 MDS RCMD. Jan 2012 RAEB.
Feb 2012 - 2 lots of chemo each 4-6 weeks in hospital to destroy leukaemic cells resulting in remission from AML.
July 6 2012 - Stem cell transplant
Doing very well, feel great
- Posts: 76
- Joined: 11 Aug 2011 17:51
So pleased you've had your Transplant and so far, so good. Have noted your Caringbridge blog and will keep in touch on there. Jayne's story must be a great source of encouragement to you and will help you to remain positive - her whole approach and attitude was simply amazing throughout and quite inspirational, but I know the support she had from her family and friends helped to keep her going.
Will be thinking of you.
So just an update!......as mentioned transplant went well, and had very few probs, came out of hospital feeling well, and this continued, with bloods staying stable, and all looking good. Then 3 weeks ago, out of nothing, started getting real bad pains in my back, it was like I had pulled my back, every movement really hurt, then urine started turning darker and darker....I gt onto hospital who told me to come in.
To cut a long story short it turned out I was suffering fom autoimmune haemolytic anaemia....over the next days I deteriorated rapidly with numerous transfusions, but he body was just destroying all the red blood cells. At my worse my HB dropped to 3.2, at that point I don't remember a thing about it. They carried on transfusing, whilst putting me on high dose of steroids to stop the effect. Within 48 hours HB started coming back up, and I'm here to tell the tale, but very scary moments. It is just so frightening how quickly things can change. But back home resting now and hoping that was a one of episode!
- Posts: 633
- Joined: 01 Dec 2009 21:52
- Location: Essex
Glad to hear you are recovering well now. Keep it up!!
- Posts: 22
- Joined: 01 Oct 2012 14:08
Look after yourself
- Posts: 52
- Joined: 15 Apr 2010 16:56
- Location: Stoke Poges, Bucks
Seems you've had a bit of a rough time. I hope things are looking up and you get an opportunity to give an update. I'm amazed at your upbeat message despite enduring a clearly horrible moment! Keep positive!
RCMD 2009 at age 49
1x MUD BMT 2010
1x MUD SCT 2010
1x Haplo Transplant 2010
4 other Half Marathons, a 10 miler and a Spartan Race!
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