Gavin - Just diagnosed

Please post here your experiences of MDS as a patient, carer, family or friend

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janetgreen
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Joined: 01 Aug 2011 19:11
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Re: Gavin - Just diagnosed

Post by janetgreen » 15 May 2013 21:50

Hi Gavin,

Good luck with everything and we will be keeping our fingers crossed for you.
Wife of Ken, 57, diagnosed with MDS (refrac cytopenia, multi-lineage dysplasia with 5q- and del of 12 and 13) in Jan 2011, was transfusion dependent. Stem cell transplant on 14th December 2012 but sadly passed away 20th July 2013. Live in Barnsley.
AlanF
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Joined: 21 Jan 2013 18:51
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Re: Gavin - Just diagnosed

Post by AlanF » 21 May 2013 12:19

Hi Gavin,
We wish you the very best
Alan & Theresa
janetstanford
Posts: 335
Joined: 01 Nov 2010 17:54
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Re: Gavin - Just diagnosed

Post by janetstanford » 21 May 2013 19:18

Hello Gavin
Best wishes and good luck
Janet :D
GAVIN1976

Re: Gavin - Just diagnosed

Post by GAVIN1976 » 29 May 2013 23:35

Just to keep all updated my original admission got postponed.....I managed to pick up a tooth infection on day of admission!

Now scheduled for 6th June, so fingers crossed we get this treatment going!
chris
Posts: 628
Joined: 01 Dec 2009 21:52
Location: Essex
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Re: Gavin - Just diagnosed

Post by chris » 30 May 2013 12:21

Hi Gavin

Keep well until 6th June then - not too long to go! Must be the stress lowering your infection-fighting!! Not surprising really.

All the best again.

Chris
Chris. (F) Age 69 (2019). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
GAVIN1976

Re: Gavin - Just diagnosed

Post by GAVIN1976 » 07 Jun 2013 10:37

Well I am in!....day -7 today.....long road ahead, but lets get this done, and get on the road to recovery.....
janetstanford
Posts: 335
Joined: 01 Nov 2010 17:54
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Re: Gavin - Just diagnosed

Post by janetstanford » 07 Jun 2013 11:46

Hi
Good to hear you got there without any problems must be nerve racking :!: BUT your there and your attitude is very positive ,hope you have a window with a good view so you can still enjoy this great sunshine we are having :)
Best wishes Janet :D
GAVIN1976

Re: Gavin - Just diagnosed

Post by GAVIN1976 » 12 Jun 2013 13:20

Well last day of chemo today....few rough days on the way, but can't believe that part nearly out the way. Rest day Tom, then for the transplant Fri.
I view of what Ken Grainger did, I also have set up blog on the caring bridge website. Have found a great way of putting the day to day experiences onto something, and the fact it shares your news to those that want to know.

Will keep you posted, as my treatment continues
Claire
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Joined: 19 Mar 2013 17:25
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Re: Gavin - Just diagnosed

Post by Claire » 12 Jun 2013 15:48

Good luck Gavin. Been wondering how you were getting on. Stay positive :D

Claire x
chris
Posts: 628
Joined: 01 Dec 2009 21:52
Location: Essex
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Re: Gavin - Just diagnosed

Post by chris » 13 Jun 2013 22:39

Hi Gavin

Hope all goes well on the big day tomorrow! We look forward to getting your CaringBridge details so we can follow your progress.

BW Chris
Chris. (F) Age 69 (2019). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
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