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About the Forum - PLEASE READ THIS FIRSTWhat to post where and general usage details, please read before postingTopics: 5, Posts: 7Moderator: Steering Committee
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Re: New users of this message…
by MDSUK View the latest post
29 Jul 2022 10:06
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Messages and Links From the Support TeamPlease post any useful / relevant links here for possible inclusion on the main websiteTopics: 17, Posts: 39Moderator: Steering Committee
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Re: Advice for hosepipe bans …
by Devjon View the latest post
15 Aug 2022 18:58
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Introductions and General ChatSay hello, tell us your story or just have a chatTopics: 231, Posts: 1595Moderator: Steering Committee
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Re: Hello, I'm back again.
by RUSE7 View the latest post
14 Aug 2022 20:02
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Events and FundraisersDetails of upcoming events and fundraisers. Please add your own post - and update us about your great challenges. Thank you!Topics: 40, Posts: 88Moderator: Steering Committee
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MDS UK Fundraiser in memory o…
by AVME13 View the latest post
24 Mar 2021 16:46
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Regional Meeting GroupsA place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.Topics: 45, Posts: 145Moderator: Steering Committee
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Re: Essex area - Contacts and…
by sophie View the latest post
11 Aug 2022 13:51
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Childhood MDSMDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.Topics: 4, Posts: 43Moderator: Steering Committee
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Re: Paediatric MDS & Monsosom…
by mumoffour View the latest post
29 Dec 2017 23:56
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CMMLChronic myelomonocytic leukaemia (CMML) is a rare type of blood cancer. In CMML there are too many monocytes in the blood. Monocytes are a type of white blood cell.Topics: 32, Posts: 292Moderator: Steering Committee
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Re: I feel a fraud having no …
by chris View the latest post
26 Jul 2022 20:48
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COVID-19 topicsHighlight and discuss any ongoing issues regarding COVID-19 topics - vaccines, PCR kits, antib0dy treatments, antibody levels, T-Cell response, SOAP trial, isolation, social distancing, masks, immune-compromised status etc). Don't hesitate to also talk about the emotional, mental, physical or financial impact of COVID-19 for you and your family.Topics: 7, Posts: 16Moderator: Steering Committee
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UK CEV list identifies highes…
by MDSUK View the latest post
29 Jul 2022 10:42
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The Diagnosis Process (incl Biopsies; IPSS/Risk groups; Progression of MDS; Mutations)Topics: 9, Posts: 62Moderator: Steering Committee
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Re: Time remaining
by chris View the latest post
28 Feb 2022 18:09
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Family, Friends and CarersSupport, information and resources for family, friends and carers of those with MDSTopics: 9, Posts: 112Moderator: Steering Committee
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Re: Hello! Husband newly diag…
by chris View the latest post
24 Nov 2021 16:25
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Fatigue and MDSFatigue is a common side effect of MDS.Topics: 3, Posts: 19Moderator: Steering Committee
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Re: Fatigue
by janetstanford View the latest post
20 Jun 2013 17:12
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MDS and Autoimmune ConditionsLooking at the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.Topics: 4, Posts: 18Moderator: Steering Committee
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My MDS with autoimmune proble…
by Kes View the latest post
16 Jun 2015 01:27
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Re: Myelodysplastic Syndrome …
by christina View the latest post
24 Jul 2019 17:15
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Re: Lenalidomide
by RUSE7 View the latest post
14 Aug 2022 20:12
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Nutrition and General Health SupplementsShare your own personal experience regarding nutrition and the use of different supplements to help with general health.
MDS UK does NOT endorse or recommend any products that may be mentioned here.
MDS UK strongly advises to ALWAYS consult your clinical team before taking ANY supplements.Topics: 4, Posts: 13Moderator: Steering Committee -
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Re: Nutritional information a…
by Devjon View the latest post
31 Jul 2022 21:25
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Re: Revlimid trial in France
by Bobby Shaw View the latest post
14 Jun 2015 15:17
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Stem Cell TransplantsStem cell transplants (previously known as Bone Marrow Transplants), the decision to have a transplant and info about GVHDTopics: 40, Posts: 452Moderator: Steering Committee
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Neutropenic diet factsheet
by MDSUK View the latest post
29 Jul 2022 15:34
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Travel or Health/Life insurance for MDSFor information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.Topics: 18, Posts: 135Moderator: Steering Committee
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Last post
Travel Insurance - June 2022 …
by RUSE7 View the latest post
15 Jul 2022 09:19
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Problems using the forumPlease post any problems you find in using the forum hereTopics: 9, Posts: 29Moderator: Steering Committee
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Last post
Re: Changing User Name
by Graham View the latest post
23 Sep 2020 09:16
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Contact requests - members onlyPost here to make contact with others in specific regions of the UK.Topics: 42, Posts: 160Moderator: Steering Committee
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Re: Husband just diagnosed
by chris View the latest post
17 Jul 2019 12:50
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BereavementIf you would like to share your memories of someone you have lost or need support dealing with a bereavement, please post here.Topics: 0, Posts: 0Moderator: Steering Committee
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